Friday, November 30, 2007

Here is a quick update-- Grier's chemo went well yesterday-- It was a quick trip to the clinic-- He watched TV.. ate a little breakfast and talked to the nurses about what he wanted for Christmas-- And before we knew it we were done!!! He wanted to go to the "NEW" target so we got permission to do that after clinic-- it was a quick trip! He actually wanted to walk around but ended up falling so he was done shopping!
Today we were busy trying to find the meds he needed for the Sub-Q shot!! After that was done I had my first lesson in giving a shot-- Sorry Carol :)-- I gave our nurse a shot and then I gave one to Grier-- Well, the worst part was cleaning him off with alcohol--- the shot was nothing to him-- He has a high pain tolerance .. but that was not at all what I expected-
The latest is the rash that has appeared!! We are watching it and changed his bandage early in case it was the tegaderm.. He is very itchy!! So, we are trying benedryl too-- Who knows what this could be-- I hope it is gone when we wake up-- Other than medical visits.. Grier and I have been busy doing carpool-- and hanging around the house! Hayes and Grace have been busy with their basketball teams and school work-- Both Hayes and Grace got all A's this grading period!!! Way to Go.. SuperSibs!

Thursday, November 29, 2007

from Jeanna....

Go Grier Go!!!
Yours Truly Needlepoint and Knitting Open House
100% of all profits go directly to the GO GRIER GO Fund

Thursday, December 6th
9:00-5:00
3802 Columbine Circle
Charlotte, NC 28211
(2 blocks from Fairview and Providence)


Great gifts for the Holidays! Scarves, blankets, ornaments, and a great selection of needlepoints and yarn for all of the knitters out there. Also an incredible needlepoint canvas trunk show! Yours Truly Needlepoint and Knitting is a nonprofit group that donates all of their profits to charity. They have made blankets and hats for children at CMC and have held many sales to raise money for various charitable organizations. Questions?: Call Lynn Edelstein 704-366-6765

Wednesday, November 28, 2007

Home by 11:30

We are home and are going to have a quiet day-- He is feeling bad or just tired-- can not tell!! Or it could be the whole discussion about how to give a shot right in front of him!! Tomorrow is a clinic day with an infusuion of chemo for 30 minutes-- That is it for now-- Going to catch up on house chores!

Tuesday, November 27, 2007

Chemo is going well-- he is still eating and drinking so that is a good sign... I am just waiting t see him gain weight! I am told he will soon but I would love to see it ASAP-- he is skin and bones--
Tomorrow-- we should get to leave after the dose of Topetecan?--- we will get to spend the night at our house and then head to the clinic for the last dose on Thursday-- Then the fun will begin-- waiting for the counts to drop and giving daily shots of Neupogen-- Did I mention I never liked shots much less giving them to my child!!! AHHHH! I am told it is so easy .. like sticking an orange-- Well, maybe a screaming, moving, skinny orange??? I am sure we will be good at it in no time-- and Grier can just hate me for this too!!! Dressing Changes, shots.. horrible medicine-- what else can his mom do--? I hope all of this cures him... and it is all a distant memory for him someday-
Grace went to Hannah Montana tonight-- it was not planned at all!!! They came up to the hospital and we were trying to decide who was going where and with who-- our normal juggling routine-- and I asked her if she wanted to go see Hannah Montana-- I saw on the computer that ticketmaster had seats-- so at 5:30-- we got tickets and she and Jeff set out to the 7:00 concert! We are really good at being flexible ... actually better than planning these days!

Monday, November 26, 2007

All has gone smoothly so far!

It is hard to believe that everything started without any delays!!! Yeah!
We got to the hospital last night around 8pm... it was VERY quiet on the floor!! They started hydration and Grier had a snack and then went to sleep!
The Dr. came in early this morning and by 9--- he started chemo! It is a little different this time... vincristine was pushed in his port... then they hung topetecan (30 min).. and finally cytoxin ( 6 hours).
My mom ended up staying for the day and I went to shop for Christmas-- that was short-lived... I am exhausted! So, I came home and took a nap!
I hope all goes well tonight and we can keep the side effects away!!

Sunday, November 25, 2007

Fever gone-- checking in tonight-

Grier's fever went away so they think it was a virus-- He did not have to have the CT scan but when we went to clinic on Friday he did have to have a few x-rays-- Everything looked fine. So we were able to stop the IV antibiotic.
The plan is to go to the Tower tonight and start hydration so we can start chemo early Monday morning. Hopefully, we can finish Wednesday and go home. Thursday will be a clinic day and the last part of chemo in the infusion room-- As we all know.. thing can change-- so hopefully we can keep to this schedule. We have had a lot of delays lately and it is not helping our Holiday plans.

Thursday, November 22, 2007

Happy Thanksgiving to all of you!

Grier has done well at home the last few days with an occasional fever at night-- last night it did not get above 100.4 so I am hoping that is a good thing-- we will find out later today if we need to go for the CT scan in the morning!

I have thought about how I should write this blog a lot -- and I do not know how I could ever name everyone (doctors, nurses, family, old and new friends, and strangers that read this blog!) that has helped us over the last 9 months-- We are very thankful for each of you that has given us encouragement, hope, and help--- Also, thanks to all those that have given to Go Grier Go Fund-- I hope we beat this someday and we can help others with this horrible, never-ending disease-- We are very Thankful for EVERYTHING and EVERYONE for becoming part of Grier's team-- Happy Thanksgiving-- and Go Grier GO!

Tuesday, November 20, 2007

Home!

Grier was discharged late today-- He was given a new antibiotic.. Rocephin and then he got a pint of blood-- He still has a fever on and off and the plan is to watch him and if he is still having fever by Thursday... he will get a CT scan on Friday @ 6:15AM!!! They want to rule out an abscess from the surgery- So, Let's hope for the fever to go away and just be a normal virus!!
His counts are Ok -- so the good thing is he is not nutrapenic (no immune system)~
He had a pretty good day at the hospital--- the "old" Grier was peeking through a bit-- he started pushing the button for the nurse.. and smiling when Shannon, Suzi, and Kristen came in!!! He did not want to go to the playroom to make a "build a bear" but the nice girl from Child Life came and brought him a bear anyway!!! He ate his usual Turkey for lunch and is having some chinese for dinner!! That is it for now-- Hopefully we will make it without any extra trips to CMC this weekend and start chemo on Monday-

Monday, November 19, 2007

The Mysterious Fever

Grier's day was fine all day until around 6pm-- then the fever returned-- So, we still have not started chemo and we will find out tomorrow what the plan is--- So far.. nothing has turned up in his blood cultures-
We had lots of visitors today-- and Grier has been sharing candy with everyone that comes in our room.. Thanks to the Reids!!!
I took Hayes and Grace to basketball and got to see lots of people at church :) -- I am off to bed early tonight-- I think sleep deprivation is getting to me!!! Hopefully we will know something by tomorrow--

Sunday, November 18, 2007

Still here with a fever!

Grier still has a high fever-- we are waiting on cultures to see if it is a line infection-- or a contaminant!!! ~~ ( Sorry could not resist :)!!!) Chemo is still on hold until we have answers-- he is on IV antibiotics so hopefully he will get rid of the fever soon-- It is nice to be in Charlotte right now-- 7T nurses are the best--
Looks like we are here for awhile--
Amy

Saturday, November 17, 2007

2nd Update for today-- not good news!

Well-- I need to update and say forget what I said in the previous blog-- Things change quickly-- Grier has a fever and chemo is on hold-- Hopefully we will be out before another Holiday is spent in the hospital!

Round 7-- aka "the clean up" round

Grier has begun round 7 of chemo-- We are in the noisy room at CMC--- but it is a private room so who can complain! He was not so happy about having to go back to the hospital this morning-- and everyone that comes in is getting the silent treatment--
We should be done sometime Monday and then we will have to go to clinic on Tuesday to get 1 more dose of chemo-- I thought this would be easier instead of spending another night at CMC-
His counts will go to zero quickly and then stay that way for awhile-- when they start to rise we will head back to NY for tests and stem cell harvesting-
That is it for now-- it is time to help with a project!!!!
Amy

Friday, November 16, 2007

Thursday, November 15, 2007

Home has been nice-- but re-entry is a little tough! Lots of mail to go through-- pay bills that need to be paid since we were gone longer than expected and just papers everywhere to look at and purge! Hayes did not feel well today so he stayed home with Grier and I-- and it was a pretty slow day of doing some chores!

The other news of the day is that we will not get to see the doctor we really like anymore at the clinic-- He is gone! Dr. Longee was great with all of us-- and we will miss him! Can not believe three weeks can change so much at the clinic! Tomorrow we will go to clinic and see Dr. McMahon- he will check Grier's counts and make sure we are good to start chemo on Saturday--

Thanks to everyone that helped so much while we were gone.. especially, Jeff's parents, Susan Shimp, Leah and David, and last but not least my mom for putting her life on hold for a few weeks! We also want to thank everyone for the blog messages, cards, packages etc. and visit while we were in NEW YORK--!! And to Wachovia for the flight yesterday-- and to our NY friends... for rides, dinner, info, gifts, emails, and keeping our sheets in the city for the next visit-- I know I have forgotten something or someone-- SO THANKS TO EVERYONE!

Tuesday, November 13, 2007

We got our walking papers!


The post-op check went fine-- we got there and they failed to tell us we had to take him to x-ray @ 9:15 this morning-- so we had to go to x-ray as soon as we got there this afternoon at 2:30! We waited.... and finally got back to see the NP-- she asks a ton of questions-- looked at his x-ray and saw some fluid still in his lower left lung-- nothing to worry about -- hopefully time will take care of that! We also saw this HUGE pathology report basically saying everything Dr. LaQ- took out was Neuroblastoma- After all that-- Dr. LaQ came in and said the same thing-- and to start chemo as soon as we get home- The NP removed a stitch from Grier's side-- it was left from the chest tube-- And that was it--- a few hours later we headed back to the Ronald!
Grier decided he wanted Pizza tonight so we headed next door to Delizia's--
We are getting ready to put in Elf for the 1000th time so we can start cleaning and packing-- This is like dorm living-- after we are clean they need to come inspect and then we can check out!
So, we are headed home tomorrow-- and will check into CMC sometime soon!

Here are some links to things we have enjoyed-- people keep asking-- :)

Lenny's--- Grier favorite!

Crumbs-- best cupcakes!!

Delizia's

Monday, November 12, 2007

Hayes, Grace, and Maggie left early this morning-- and Grier was pretty quiet afterwards-- He told us that Grace was pretty excited about going home-- we asked him if he was and he said yes-- Jeff and I were trying to perk him up so we asked him if he wanted to walk to the zoo-- He liked that idea so we headed off to the central park zoo-- He did not want to get out of the stroller but he enjoyed watching the sea lions eat their breakfast- We went back to the Ronald and he had a package to open! He really like his coffee cup..and everything else in the box!. Thanks Millie! And all the cars things from Kailyn-- He seemed to be in a better mood after the turkey sandwich from......???? (guess)-- He wanted to walk to the grocery store -- so we headed out again! He liked shopping the isles-- and bought some goldfish and apple juice!
He feels a lot better after the miralax worked this afternoon!!! It is a good thing because we were going to get him a gingerbread latte from Starbucks next!-- So, we are excited to share that news at our post-op appt. tomorrow @ 2:30 and we can stop worrying about it-- no blockage!
We ended the day with a wonderful Italian dinner delivered by Charlie--Jeff could not remember the name of the restaurant he went to but it was great-- It was a great surprise and we had a relaxing dinner since Grier had fallen asleep!
We are very blessed to have the support we have during this time in our lives-- Thanks to everyone for everything!

Sunday, November 11, 2007

A good Day!


The Museum Of Natural History...Top of the Rock.. and lunch @ ESPN zone-- with Hayes and Grace = a very nice NYC day!!!!
Grier had a good day too with Maggie-- They went to Lenny's for takeout... strolled in central park.. and a trip to FAO for another animal!! We may need to book another flight just for the animals we have gotten while we are here- !! All are in the bed with him and a select few get to leave the Ronald and get out and ride in the stroller-
He has eaten some today-- and loves coke ( "brown coke")-- he had one in a glass bottle today-- and was very proud of that--
I would love to post some pictures-- but my battery in my camera was dead!!!-- Of all days for that to happen!!! Oh well-- we had a good time anyway!
The crew leaves in the morning-- we can start cleaning this room-- I will not miss the "camping out" we have been doing for the last couple of weeks-- but being so close to MSKCC is worth living in close quarters with a cooler bag as a fridge!! Someone said when we go home we will have a new appreciation of our house!! I believe that!!!

Saturday, November 10, 2007

family time-


Here is a quick update before all 5 of us go to bed---:)
Hayes, Grace, and Maggie got here very early this morning ( Thanks to the Bonds for the frequent flyer miles and Zanna for the ride to the airport!)-- Some of us took a nap ( me included) before we went to LENNY"S for lunch!! Then the boys came back and played in the playroom and Grace and Maggie and I went shopping-- it was nice to walk around NY-- I actually had not been past 1st Ave-- in a long time-
They have been good to get Grier to talk more-- he is actually eating a little too-- We got him some "muscle milk"-- full of protein and he seems OK with drinking it!
So, it was a good day- and tomorrow will be busy as well-- Hayes wants to go to the Museum of Natural History AGAIN--- so that is the plan-- Maggie may stay with Grier since his stamina is not so good- It will be nice to spend some time with them and not have to worry about anything for a little while-

Friday, November 9, 2007

This has been a really long day-- almost the whole day was spent in the room-- Grier has taken several naps today-- He does not have much energy and does not want to play- We are trying to get him to eat-- and that is a challenge-- he did takes some sips of a milkshake today- He asked for a pancake for dinner-- but as soon as we got it-- he did not like that idea- We think the laxative is giving him stomach cramps-- but really have no idea since he will not tell us- He did go to the drink machine a few times-- so that was good to get him walking again-

The Charlotte family will be here tomorrow-- maybe he will perk up for them- I hope so-- because this will be an extra LONG weekend with all of us in this tiny room-- I wish I had some TPN to hook him up to-- he is getting so tiny again-

Thursday, November 8, 2007


Grier was discharged today from Sloan-- He is taking dulcolax :) and that can be done at the Ronald just as easy as the hospital room!!! I heard they had a room crunch so he was moved out-- Thank Goodness- I know he will be able to recover better in a quiet room with much noise-- He has already had some batting practice in the room-- He is hitting "home runs" with his Mets gear! Sorry-- Boston fans-- I have tried!!!
We are scheduled for a clinic /post-op appt. on Tuesday ( only day the surgeon has clinic appts)-- then we will be on our way home pending a flight plan from corporate angels~ We are a few steps closer-- :)

Looks like we will have another busy weekend wit ha visit from Hayes, Grace, and Maggie!
Hopefully Grier will be up to venturing out of the Ronald-

Amy

PS-- I didn't know my bingo comment was going get so many people offering games-- Please do not send anything else here-- we are being over taken by toys :) Don't worry Grier will know how to play soon enough-- I bet we have one in our game closet too!!
Everyone has been so generous-- thanks so much!! He loved opening the boxes when we got back to the Ronald today!!

Wednesday, November 7, 2007

Today was more of the same-- except late in the day he did get to add soft foods to his diet-- The NP asks him what he would want to eat-- and of course he wanted a turkey sandwich :)--- OH well-- he had to settle for pudding, yogurt, eggs, applesauce, pound cake-- etc.-- he tried a little of each but was not that impressed by any of it-- He did drink a lot of Gatorade today-- and then he heard there was a hot chocolate machine-- so that was the number #1 request-- We took it ALL very slow today- with only one set back this morning-- Honestly, the days are running together-- and my updates sound like a broken record-- but I hope tomorrow is the day they tell us to go "home" aka the Ronald!

He went to the play room and played with the cash register again-- and tonight a volunteer came around to each room announcing "BINGO Night"--She asked Grier if he wanted to play bingo and explained the prizes-- he said "yes"-- and after she left Grier asked Jeff and I " What is Bingo?"-- I laughed for a second and then thought how sad that he knows about TPN, chemo, and everything else in this cancer world but has no idea what Bingo is! So, I was determined to get him down there-- we told him he could win something so he went-- we made it in the door and lots of "big" kids were there and he was ready to leave-- the nice volunteer gave him a prize anyway :)

Thanks again for all the cards.. tons of cards from Covenant Kids Care, more pictures from First Pres WDS, gift cards and cards of encouragement from friends!! Also-- a huge thanks to John Hoskins for putting Hayes' fan up!! Thanks so much!! He was very excited and that was a project I could not finish before we left- And last but not least tonight I am going to sleep on new sheets!!! Thanks Pat-- This will help me not have to rush to wash their sheets before we leave-- Theirs are washed and ready for the next family :)


It is hard to believe Sunday will be three weeks here-- especially since the plan was for 8 days! We do not have a date to come home yet-- but I am packed and ready--:) Even if it will be a transfer to a different hospital-- it will still be great to be in Charlotte-- I am looking forward in seeing grass even if it is not green!!

Tuesday, November 6, 2007

NG tube out-- BUT.....

Grier had his NG tube taken out this morning-- and was able to start clear liquids! He had some apple juice and ice chips-- and a few bites of an Italian Ice-- He did ok with all of it until around 6:30-- and he got sick again- So, we are back to ice chips only !! He keeps telling me he is hungry and thirsty-- Poor Thing! He did walk to the play room and played with the cash register this time-- He is watching Curious George-- we have almost worn out the CD that was made from PBS-- now he is on to Maisy and other noggins shows~ really anything on DVD is good-- no commercials!!!
Jeff and I just switched so the tag-team parenting continues-- Honestly-- I may have to send him home if we are here much longer-- Someone has to work!!
We have a new roommate-- she is very cute--her mom thought the same thing about this room!! I mentioned it to the doctors and he said after we get out of here we will not even remember this part-- Well- It would be nice to have windows and space while we are here! And I do have a very good memory :)

Monday, November 5, 2007

Today was a day of no change until tonight around 8pm-- He started talking a little bit and I quickly called home so everyone could talk to him while he was in the mood-- :)
It has been 1 week since the surgery-- hard to believe since we have moved so many times- I thought we would have been home by now-- :)
After talking on the phone-- he colored a picture in a coloring book-- and then said he wanted to walk to the playroom-- So, we got all his cords together and unplugged the pump and went for a walk-- He played with the kitchen in the playroom for a few minutes but quickly got tired so we went back to our tiny room-- As soon as he got back in the bed he was asleep-
His still has his NG tube in but it is not suctioning-- just using gravity- So far so good with the nausea- He is still on 2 meds for nausea but it seems to be working better-- The surgeon will check tomorrow again and see what the next step is--
We have seen 2 roommates check out-- so our time has got to be close-
Thanks for all the cards--especially the packet from 3rd graders in GA-- the letters were fun to read-- Kids say the perfect thing to kids-- ! Also, the cards from First Pres Weekday school-- they were great!
We have decided to come to Charlotte for chemo-- basically chemo is chemo and CMC can do the same as NYC-- So, we think the benefit of being at home or on 7 tower would out weigh the convenience of already being in NY- Grier is so much more comfortable with Shannon, Scrappy, and the rest of the nurses on 7T-- Also I want Grier to get a little stronger before we knock him out again with a heavy dose of poison! We will have to stay in close contact with MSKCC so we can get back here at the optimal time for tests -- and discussion of 3F8-- But we will get back here in time!!!

Sunday, November 4, 2007

Not much change with Grier-- he still has an NG tube in and they are watching closely to monitor any changes with the output- He still has times when he feels nauseous. He is also very quiet. And we all know that is not like Grier- Originally they thought we would be out of here by now but it looks like that is not going to happen anytime soon-- lots of things need to change- This is very much like last April at CMC for the LONG stay--

On another note-- my weekend was good--I got to show off my new knowledge of the city to some good friends from Charlotte, Rock Hill and Shelby-- We had a great lunch at Serendipity3 and did some walking!! Thanks to Amy in Rock Hill for the lunch-- That was so generous of you! It was fun to be around some familiar faces!

Today was the NY Marathon-- it is almost like a holiday around here--It was fun to see the runners and all the spectators-- Every year there is a team from the hospital that runs and raises money for pediatric cancer research-- It is called "Fred's Team" They bring the kids outside to cheer on the team if they are able-- obviously Grier was not able to watch this year- I took some pictures of their shirts-- I will try to post later- The bad part is you are stuck on one side of the street for a long time!!!

Tomorrow we will reevaluate the plan with Grier and maybe do a CT scan to see if anything is causing this problem or if it is just his digestive system is slowly recovering-

PS-- I opened a package today and it was several pieces of wood flooring!! No name was in it-- and it was mailed from Fairview road-- So, I am assuming there was a mix up and someone needs these floor pieces-- But it did make me laugh--- I will call them tomorrow so UPS can come pick up the box-- :)

Saturday, November 3, 2007

Last Night was the longest ever-- Zofran did not help at all with his nausea--- Finally they called the "fellow" and she called for an x-ray-- At 1:00am they wheeled us down for 2 x rays-- The good news was no blockage-- the bad news he was still vomiting ! So after they tried a different nausea med.. they came in at 3:00-- to put the NG tube back in. YUCK! That was suppose to be the cure all but he continued to get sick. The tube was not working for some reason-- Finally after many trips in here and a 3rd nausea med-- they got the tube to work. This all happened around 5:30! Then vitals after that-- Needless to say it was a night from H***! He is still sleeping right now-- Jeff is at the Ronald and I will go there later. Some friends decided to come visit today so the plan was to get out of here for awhile with them-- Hmm-- I am either going to have to sleep or load up on caffeine! I was told to expect set backs so I guess I am not surprised--
Here's to cold windy NYC day-- courtesy of the tropical storm!

Friday, November 2, 2007

Since I am not sleeping -- I thought I would update the blog again--
Shift change has helped- But he is still vomiting so they have ordered an abdominal x-ray to see if there is a blockage or ileus?? Crystal will be so impressed I brought this up-- I remember that from late April! Who knows when they will come to get us-- sometime early am is my guess-- too bad they moved us out of POU! The surgeon mentioned discharge tomorrow or Sunday-- but I really doubt that will be happening- :)
I have been wrong about how fast we are moving so far so we will see-- being at the Ronald all together will be nice-- I am a little tired of walking the streets by myself! Hopefully they will come soon and figure this out so we can get some rest-
Grier has been moved yet again-- this time it is to the pediatric floor to the semi-private rooms-- I have dreaded this part-- 2 pumps beeping, 2 tv's, no privacy, 1 bathroom and a space about the size of a closet! There is only a walk way to walk around the bed-- and with that you are moving furniture-- We were so well taken car of the past few nights and so far I am getting frustrated here- He started vomiting as soon as we got here and I have called several times for zofran-- Funny-- I could get him morphine in a second but nausea meds needs an act of congress-- And who wants to feel sick after abdominal surgery-! Why they have these rooms is beyond me- Grier is already overwhelmed and this just adds to the problem- And forget HIPPA-- the curtain is not sound proof!

Besides Grier being overwhelmed-- Jeff and I had a huge amount of info unloaded on us today-- We need to make a ton of decisions quickly regarding where to have the next chemo treatment-- There are so many factors to weigh-- and getting Grier home as soon possible where he can be "Grier" is important-- So, we have a call in to Dr. L to help guide this decision- It is possible they could start chemo this Monday or Tuesday here-- I can not believe it but that is what they said- If we decide to stay here Jeff will come home for awhile-- I am glad the surgery happened so quickly without much notice-- but I would love for things to slow down a little since that that part is over- We all need to catch our breath!

They just brought the zofran-- almost 2 hours since the first call in!! This may be the longest night ever-- Good thing-- tomorrow is a brand new day!

Thursday, November 1, 2007

We are getting closer--



Grier has had a busy day so far. Early this morning PT came in and got him sitting in bed.. then had him scoot to the edge... then he was put on the floor and walked to me in the chair and sat in the chair for awhile-- After she left Dr. LaQ-- came in to see him and decided tubes should come out-- so the chest tube, NG tube, and catheter is out-- He also had some bandages removed-- It was not pleasant for him while all that was happening but he looks better now-- This all happened before 11 this morning-
He walked a little more this afternoon-- the whole time telling us he can't walk!! Well-- he walked to an ice machine-- and back to the room- He is still pretty quiet-- He said one thing today-- Hey Dad- Can I have some smarties? Jeff asked the nurse and he still needs to wait to eat something-
He still needs some oxygen sometimes-- and tonight the hope is he gets some good sleep--- while continuing to manage pain--
Tomorrow he will need to walk more and more-- and spend more time in a chair- They also want him to go to the playroom--
The other good news of today was the bone marrow test result-- the 4 aspirations were clean for now-- I say that because NB cells can always be hiding-
We are repeatedly told how well he is doing-- All those prayers worked!!
A few steps closer to getting home-
Amy

I am going to post some pictures tonight when I walk back to the Ronald-

He feels like "POO" in the POU!


Grier is still doing OK-- I decided to update earlier today since I forgot a lot of stuff yesterday-
He moves his legs-- Today PT will come in and get him up and on his feet- He still has tons of tubes in and knowing Grier that is driving him crazy- He has a catheter, NG tube, cannula for oxygen, chest tube and tons of monitors-- so he is hooked up! Last night he was very uncomfortable and we could not figure out why-- he had just had a medicine for pain-- and it ended up that he felt the tube from the catheter and saw it -- After we covered him up he was better-- His swelling is down a little and they say after he gets up a little everything will get better and tubes will start coming out-
He did not sleep great-- he was up humming every 30-45 minutes but easily calmed back down-- This is probably not pain but just nerves because the change of rooms-- and the difference between the two- He is calm right now- watching Micky Mouse-- Yesterday the show of choice was Elf-- and Kicking and Screaming-- He must really like Will Ferrell-

So, the plan for today is to get him up-- sounds easy but it is very hard to watch- From what I hear PT is going to be good here- They will also continue to do chest compressions-- And hopefully this will help his lungs and in turn get the fever to go away-

I had the best chair bed here!! I guess I have slept on enough to rate them but I sure hope the new LCH has this kind-- it is more comfortable than the bed at the Ronald!

The NY Marathon is Sunday- Everyone around here is talking about it-- lots of doctors and nurses will be running in it- They run right by the hospital- Too bad Mrs. Hayles is not running in it this year--!!

That is it for now-- this room has the perfect name "POU" because you feel like "poo" if you are in here!

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's