Tuesday, January 20, 2009

A very LONG day

Day 1 is complete!  We started out bright and early because they called and said we could have an earlier time for his MRI-- so we got there and waited-- and ended up getting called back after our scheduled time!  

Grier did great getting his IV-- he was very still and the nurse got it in the first time without using numbing creme-  I was telling Grier how great he did and he said " I stayed still except for my tears-- they were moving!!"  While we were in the procedure room we saw Dr. Kushner for a second and he said he looks good-- and doesn't look like he should be a patient here-- I then told him about our "scare" and he perked up a bit and said that was the right thing to do with the testing in Charlotte--  because you never know

After the IV was in Grier perked up a bit and was not so nervous-- he was very shy at first when some of the nurses were talking to him and our social worker walked by and reminded us all that he has been away along time and is not used to MSKCC like he was when he was there a lot- Ursula called us back to be checked out for anesthesia and she got to see the real Grier--- basically he serenaded her with Twinkle Twinkle Christmas Star, Bears are Sleeping,  and I like to move it-- it was funny!!  We had to tell her all of his ailments and accidents that he has had while we were at home-- and after I watched her write all that-- I said-" maybe it was not as uneventful at home after all!!"

We waited for awhile for the MRI. We passed the time by watching CNN and some kids from the pediatric floor put on a parade around the hospital with their American flags-- We finally finished up around 12:30-- and it felt like 6pm!  

We got back to the Ronald and went to Lenny's ( I know some are not surprised!)-- We tried to walk around awhile but the 17 degrees was making it difficult-- so we came back and played in our room and in the playroom-- Grier made his own soda-- at the activity for the day and drank it all!  He must have had extra carbonation because he was burping all afternoon!  

We start our day of waiting tomorrow at 10:30--- we are not scheduled until 12:30-- so it will be another long day-  He can not eat until after the 12:30 procedure and the only thing he can drink is the contrast--         

Thanks for checking in--- our internet is barely working so it is hard to update-- for some reason it has worked after 8pm both nights-

4 comments:

Unknown said...

Amy,

I'm so glad the first day was so great! I'm also proud that Grier handled his IV with such courage!! (when I got mine I had to look away the WHOLE time and my mother will swear I broke some bones in her hand holding on too tightly, hahaha) Hopefully day 2 will go just as smoothly, but not as long!

Love and God Bless,
Julie :)

Mary Ellen Paine said...

Happy to hear day 1 is over and Dr. K thought he looked so good. Hope today goes quickly and the weather warms.
I am glad to hear he is entertaining everyone there as he does here. Tell him we will miss him at school today. Not sure about the playground it is pretty cold here.
Thinking of you today.
Love,
The Paine's

Anonymous said...

Way to go Grier! that's awesome. THanks for the updates Amy! We think about you guys daily.

Netha and all

Blythe Thompson said...

We miss you Grier!! All your friends are asking about you-especially Jane and Joshua. Everyone is excited that you're doing so well and that you get to see so much snow. We sang the bear song in music today and danced a crazy dance with a lot of woop woop sounds. Be sweet and don't drink too much soda-we want you to feel good when you get back to school.
Love,
Mrs. Thompson

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

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30 minutes later

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Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
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On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

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Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
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Grier & Grace at Covenant

Grier & Grace at Covenant

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Grier & Pat

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Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's