The Big Surprise

Oh my.... I am sorry that I did not update like I said I was going to do--- I think I had a case of trying to do too much again--- :) I seem to have that problem a lot!

The BIG surprise-----

On Friday morning, not even a week after we have been back from NYC I got a phone call from Molly Grantham (news anchor) telling me she had gotten an email from Leslie Parnell.  Leslie knew Grier liked the Black Eyed Peas and they were coming to Charlotte for a concert--- Well, Molly told me that she was able to get 5 tickets for the concert on Saturday night for our family.  I was not suppose to tell the kids.... we were going to surprise them--this part made me nervous.  Most of our Saturdays are crazy--- sports..sports..and more sports and last Saturday was no different. Our day started with a basketball game then we went to lunch with our soccer teams friends, then on to a soccer game-- Also on our calendar was a baseball game that our family friend, Michael was playing in at UNCC--- so we headed out there around 4--- It was a busy Saturday but everyone was very happy to be doing some normal stuff together. On our way home from baseball Grier was crying  that his tooth hurt--- not a good sign... and it came totally out of the blue!  I panicked a little because I was trying to get ready for the BIG Surprise--It was a different panic since I had just heard he had cleans scans- He seemed to calm down a little-- so we headed to Brixx to have a "quick" bite and that was our meeting place that we had planned with Molly.  Well, BRIXX was crowded- actually all of the places were-- so we ended up at  Fuel Pizza-- Molly and her camera man came in and surprised Grier and the kids with tickets--- Grier was very shy... and I knew this could happen... oh well--- never know how a 5 year old will react.  He started crying again and I was a little more panicked because he does not complain unless something is really wrong-- .  We finished dinner... went outside and met Molly again and she filmed us walking to the Bobcats stadium.  Still not sure Grier actually understood the whole concert idea.... he told Molly he had been to a concert before --- and we asked when??? He said Hayes' band concert--- yep... that was only 2 days ago :) We tried to remind him of seeing Roger Day in concert--- but he still did not get it... we made it inside after several attempts to "mic" Grier--- the tears started again... that little black box with wires looked like something he has had attatched to him at the hospital--- so after talking to him the tears stopped again--- We walked into the stadium and they filmed us going to our seat-- we also did an interview--- sooooo not my favorite thing to do--- especially talking about Grier--- Grier was being really shy and I was "done" at this point.... and I asked Grier if he could please talk and awswer the questions--- we are whispering at this point why Jeff is talking on camera... Grier suggests to me that we can make a deal--- and I agree... so he says-- if I talk and sing the song will you get me a star wars shooter?-- I said YES--- and he turned to the camera and sang "I got a feeling"- After our interview they followed us to our seats... the opening act was playing and well.... LMFAO was not so good--- Grier and I ended up waiting for the Black Eyed Peas to start in the concourse---- It took so long he was wearing out--- :( Jeff, Hayes and Grace stayed inside listening to the opening act and the BEPs-- Grier and I ended up going home around 9:30-- he did hear "let's get it started".... he was really tired----- The night was such a great idea--- :) I was really excited that the 5 of us got to do something special together-- Grier has gotten to do lots of things in NYC due to generous companies and teams but since Hayes and Grace are not with us there-- they do not get to do it-  They are the ones that needed that night and they really liked it--- Grier liked it too but in a 5 year old way..... :)

I am including the video clip----
http://www.wbtv.com/Global/story.asp?S=12026854


A special thanks to all involved---- it was a fun night and very memorable--- we will laugh about it for a long time--- and by the way... we made the trip to Target on Sunday morning so I could pay up!!! He is the proud new owner of a Star Wars Shooter-

ps-- Grier's tooth is a lot better--- he had something stuck in it--- a peanut from the baseball game :(
Also-- I brought his ipod to dinner so he could sing a long with it-- We had a "malfunction" and somehow all of his BEPs song were gone---- As a friend would say... Murphy's Law~

We have been very busy since we landed in Charlotte on Saturday afternoon---- Grier has not missed a beat--- keeps up with anyone and everyone--- certainly not afraid to wrestle with Hayes--- it just makes me cringe as he runs into his BIG brother--- ugh... not sure I will ever get used to that-- You know it was just a couple of days ago he had 4 samples of bone and bone marrow removed from his front and back hips......... again--- not slowing down and thrilled to be at home able to run and wrestle!

Sunday was Valentine's Day and we spent most of the day at Ben & Jerry's @ Parke Towne Village--- Lesa Helbein and Charles Durham ( the owner of the scoop shop) did a wonderful job getting the word out to people to buy gift certificates, cakes, and anything at the shop--- We had a great time getting to see everyone who came in the shop to get a "treat"--  There was a steady flow of people all day--- Thanks to Charles Durham and the two hardest Ben & Jerry's employees and all of you that bought something from Ben & Jerry's.... a donation of $507 will be made to Cookies for Kids Cancer.  It was a really fun day and I am glad we had such a good turnout ( their sales were more than double than any other day this month)--- Hopefully we can do it again when it gets warmer outside.

Monday was suppose to be a another day off from school but it turned out to be a make-up day because of the snow--- And I admit I was so happy...... ! I needed a day to regroup.... Grier just hung out with me and we did not rush around to do anything except we did go to lunch at Selwyn--- we surprised Grace!  Other than that I made some insurance calls and quickly decided that could wait -- I was not in the mood to talk to them and I need to be---- I guess I will work on that soon--- ugh... I wish there was an easier way besides arguing about experimental treatment --in network vs. out of network--- etc--- It adds a whole new stress element to having a child with cancer--  it is very time consuming....  I waited around all Monday hoping to hear some news from New York--- and I was reading caringbridge pages from friends that were in scans last week and they knew results so I was getting a little impatient- So... this morning I emailed Dr. K to ask for ANY results--- I know it is too early for bone marrow tests.  He emailed me back and said all scans so far show NO neuroblastoma--- so that is good news--- now we just need to keep it that way :)  Grier started accutane yesterday and will be on that for the next 14 days- After hearing lots of people tell me that they took accutane or their teenager took it --I was a little curious about the dose-- so looked online and if  they were using it to treat acne - they would start her at 10 mg per day and could work up to 20 mg per day but only if needed and with great hesitation. A half milligram per kilo...Grier is 18 kg and he  takes 110 mg per day-. Accutane is a fairly nasty drug at low doses... there are a ton of warnings on it and it is controlled( we have to have a special ID to get it)--- but  we have no other options - and this is the less toxic of almost all of his treatments combined- 

We have now moved from every 3 weeks in NEW YORK to every 7 weeks on the 3F8 protocol -- this will continue for 2 years!--- I not sure we will know what to do with ALL that time at home ..... Just kidding.... I am actually lining up the repairmen to help with all the things that are broken at home that we have just ignored for so long--- hopefully by the time we fly back to NYC on 4/11 our list will be empty :)-- Yes the 11th  is Jeff's 40th birthday but it was either this day or the kids Spring Break--- and we have already had a couple of Spring Breaks ruined by Neuroblastoma so this week will work out better-- We should only have to be up there for a week of 3f8--


looking forward to being home longer and getting back into the swing of things--- thanks to all that helped last week, my mom , Ross, Bill, Stuart, Melissa, Lee, Nancy, Mick, Jenny, Susan-- and for all the of the meals that were delivered-- as well the facebook messages and CB and blog messages--- :) All the help made  a long week more manageable-

OK-- I admit I did not feel like describing our crazy Friday--- I was a little tired and really did not have anything nice to say-- Grier did great getting up EARLY again and we made it to the hospital by 7:45--- no problems again walking in the ice--- We waited for awhile in bed #6 until they came and got us for bone marrows--- Grier skipped his way back to the procedure room area--- and we waited for a little bit until they called his name... he and I walked in to the room he hopped up on the table and we said hi- to all in the room--- we know almost all the anesthesiologist so she asked how we had been etc.... nice huh? Kind of weird to know them-- we use a lot of propafal!  Dr. Kushner was in there getting ready--- Grier asked to push the medicine and she let him--- so he was happy.... I held his head and then left after his body went limp.... About 30 minutes later they brought groggy Grier out and put him in the stroller and off we went to the last day of 3F8---- Friday 3F8's are the best--- you know the week is over... Grier had lots of pain and when the pumped beeped to let us know the infusion was done he was not done screaming in pain and asking for hot and cold packs--- I love to hear the beep because it usually means he will sleep but this day was different-- who knows why???? We ended up going back to the Ronald later than a "usual Friday" and he went right back to sleep--- not a peaceful sleep -- he was puffy and had a dilaudid headache-- and also some nausea--  Being "room bound" again gave me time to get the laundry done so we could start thinking about packing-- I went to the computer room to print our boarding passes and found out they had no ink--- hmmmm?? I asked if someone could print them in their office and was told "no"--- seriously??? I was not asking to surf the internet.... so I went upstairs and looked for somewhere to go to print the tickets- no luck according to the staff-- I went to the lobby to ask if they would print them for me and she said to come back at 4-- it was 3:30-- I came back at 4-- and then someone was going to have to call me-- by that time I had enough of the run around-- I finished the laundry.... Later that night I walked to Brother Jimmy's for takeout--- and to Lenny's for Grier--- after dinner --Grier and I went to the playroom for an Olympic Party--- it was a wii night--- He was shy at first and did not want to play but later got in the mix--- actually won first place against 3 other kids and was very pumped--- "mom, one kid was like 16"-- The funny thing was he was acting so shy the volunteer told him she would help him-- little did she know... no help was needed on the wii :)

This morning started with a 4:15am wake-up call from USAir--- our 11:25 flight had been delayed-- I thought is was due to weather but after we listened to other flights depart to Charlotte I was wondering... it was mechanical--- and it kept getting pushed back all day--- Finally around 2:30 we took off--- they replaced the leaking fuel line--- whew...... I tried to get us on stand by but since it was a holiday weekend the flights were oversold--- and the gate agents must have had a hell of a week because they were rude--- I even said... tough week of delays, huh?  I also gave then our story.... and I ALMOST NEVER do that but it did not help--- that is why I never to do it -- because it makes me so mad--- I think they think I said he had a cold or something--

Bill picked us up in Charlotte and we headed home to Hayes and Grace and Maggie--- went to dinner and I am now ready for bed-- but no one else seems to be ready!! Really just want some quiet---- I actually hear icarly's theme song in the background---- Ugh!!!

I guess you are saying .... did she find out the results????? I do not have any more than I had the other day--- looks like I will be waiting for the "212 area code to come on the phone and make me want to get sick moment" sometime next week----

Happy Valentine's Day---- We are going to celebrate at Ben & Jerry's so save some Chocolate Chip Cookie Dough for our little hero--We are very thankful they are doing this fundraiser to support Cookies For Kids Cancer--- He has had a tough week but again amazed us with the way he handles it all--- he also is the best traveler--- I swear he is never in a bad mood--- I watched so many kids today at the airport having tantrum after tantrum and they were going on vacation!!!--- I thought about how lucky we are that he is so pleasant to be around..... even at the hospital-- :)

day four over!

The snow is not so bad--- probably the easiest thing we had to deal with all day-- :) NYC does a fantastic job removing it from the streets and sidewalks---- I was so amazed.... it was not a big deal at all--- I read in the Charlotte Observer (online) that Charlotte is supposed to get some on Friday night--- is that still true??? I am a little nervous about that--- I do not want to have to deal with flight changes and cancellations--- I think I will just assume the observer is wrong ( can you tell I am not a fan---) and hope the weather will hold out-  Please don't email me about my opinion on the CLT observer--- if you only knew how many times I have talked to people about doing a story during Childhood Cancer Awareness Month, and  other fundraisers etc--- and the lack of response I have gotten-- it is just wrong---

Before I go on anymore--- I do not have any results from the MIBG test-- it is driving me crazy-- Grier did really well staying still during his first time without anesthesia in the MIBG--- After he was set -up on the table I asked for the screen to face the wall-- I got a little laugh from one of our nurses.... but I told her I did not feel like pretending I was a radiologist this morning so please just put it somewhere I would not be tempted to look at it- The test was a little over an hour and it was very LONG--- Grier had some tears when the machine was scanning his head-- it gets very close-- he told me he thought it was going to "squish him"-- it moved slowly down his whole body -- so slow that you did not even notice it was moving--
We talked through the whole test about everything even President's Day-- even answered a text from his teacher... :) We had the movie  Alvin and the Chipmunks on but it was a little hard to see--- I guess it was ok not to have him sedated--- I really hate to see tears- but hopefully he will know what is to come next time-- I know the more we can do without anesthesia the easy it will be in the long run.

After the scan we went right up to 3F8---- it was another painful day--- The last two days his face has been all puffy.... so I had a feeling he was going to feel bad most of the afternoon--- and he did! He took a little nap... and woke up looking more like the chipmonks than Grier--- and was feeling nauseous -- that quickly turned into several bouts of vomitting--- He told me... "I can't go to FAO".  I knew he was feeling bad--  He felt a little better after taking some medicine but it is still touch and go- We ended up having dinner here at the house--- they were celebrating the Chinese New Year-- it was nice to get out of these 4 walls for a little-- but Grier can not handle the dining room when he feels bad because it is too loud -- so we headed back up to the room. Let me just say I have seen enough of icarly and spongebob to last my whole life-

He knows tomorrow is the last day--- and is already worrying about getting his port de-accessed.  He also has his bone marrow test tomorrow--- We have to be at the hospital at 7:30 again---- Hopefully it will be on-time so we can get this last round of 3F8 over--

one more shot to go before we have some time off--- actually it will be the longest we have been home in awhile--- not sure the exact date because I may change it because of Jeff's 40th birthday--- we will have to see--  I am hoping to get some time at home--- I am beginiing to feel like a visitor in my own house-  Grier must feel a little the same-- he is much more comfortable walking around the hospital by himself-- at home he will not go in any room by himself--- I did not really notice until he offered to go get me some cranberry juice and he went all by himself (twice)-- I heard him saying "hi" to the nurses as he went-- :)

alright... hope the news comes tomorrow because the waiting stinks---

ps-- we had a new person "clear Grier" for treatment today--- he cracked me up--- She asked what grade he was in ?? And looked at her and said I am not in a grade--- I am in TK- ! He usually does not answer too many questions unless he knows them.

HUMP Day-

Today is HUMP day... I feel like we have gotten over the hump of this crazy week !

We woke up early this morning to snow--- lots of blowing snow.... it made the walk to the hospital very different... we were lucky that some of the sidewalks were shoveled early this morning-- Grier rode in the stroller -- he was warm and covered as we sloshed through the snow and slush!

As soon as we got to the hospital we headed up to the 9th floor.... a quick CBC test and then we were off to the 11th floor to wait for his MRI.  He was ready for the "white medicine"--- he whispered as we walked in the room to ask the anesthesiaologist if he could push the "white medicine"-- She was new to us and I guess had not been asked that ? before.... she said.. well, you can help but I have to push it.  He was fine with that and it took effect quickly.  We waited about 1 1/2 hours and the nurse brought groggy Grier out and we plopped him in the stroller and of we went back to the 9th Floor for 3F8-

Grier was a little "drunk" after the MRI but was chatty to everyone-- the clowns came and he was telling them jokes -- he had some visits from a few of our favorite nurses and told more jokes, talked about his friends at school and showed them a magic trick-- They started his pre-meds for 3F8 and then the infusion started.  The infusion takes 30 minutes... he was fine... sitting up talking and playing his itouch-- his heartrate was 98 and oxygen was 100--- we have not ever made it through the entire infusion like that before-- I was getting a little worried --- I want a reaction to know it is working--- Then it was time for the "flush"..... 20 minutes... his heartrate went up to 103-110 but he usually is 178-190 -- it was really weird.  He asked for a cold pack for his head and then it started -- lots of pain.... all after the whole process was done--- he actually had lots of pain and 3 rescues of dilaudid-- the most all week--- I guess it was another reminder that you don't know what to expect-  

After 3F8 we had to go to Nuclear Medicine for his radioactive injection.  He was still in a haze so he stayed in the stroller and was in and out of sleep while we waited our turn.  Around 3:30 we were done and it was time to brave the elements again-- We had watched the news all day and they kept saying the worst of the blizzard was yet to come--- and they were right!!! We walked back and the snowing was blowing hard and it was "slushy" all over.... we made it back and Grier slept off his cocktail of drugs--  He had a headache today -- he wanted to play so much but everytime he would get up he would lay back down because he did not feel great.

I did get an email from our doctor with some good news... his CT and MRI look good-- whew :)  we are waiting on 3 more test results....

Tomorrow we head back at 7:30 in the morning--- can we say VERY slippery??? Grier is going to do his MIBG without anesthesia for the first time--- actually we both are... I am not going to look at the screen while I am in there with him--- :) I hope he can do it but we do have anesthesia on call in case we need them-- This is a full body scan that lights up Neuroblastoma cells-- I have never been in the room during this scan so it will be new to me too--- I did get some great advice from friends... it is nice to know what can happen so I do not panic and assume the worst-

2 more shots as Grier says--- can't wait to say we are headed home-- :)

Tuesdays 3F8 update and some good news-

Charlotte's Cookies for Kids Cancer Bake Sale--- more press!!

The second day of the 3F8 infusion is done--- the side effects went as usual and he is now sleeping off the drugs while we are at the Ronald-
Tomorrow is going to be an interesting day... not because of the added procedures ....  it is the weather that will add to the fun.  Apparently NYC is going to get a blizzard... schools are closed tomorrow and the weather forcast is 40 mph winds, 10 degrees and 12-18 inches of snow.... Wow-- Grier does not seem too impressed right now--- he is used to Charlotte snowfall so this should be fun... Can't wait to see what the walk to the hospital will be like... :)

I wanted to share the great article that was on Cookies for kids Cancer's Blog--- They really captured the spirit of the amazing bake sale--- Also there is an article in Little One's Magazine--- they were talking about it too--- very exciting!!

Upcoming Event--

HOPE, LOVE & ICE CREAM-

This Sunday is Valentine's Day and Ben & Jerry's @ Parke Towne Village ( Woodlawn Rd- below Jason's Deli) is donating 25% of their sales from 12-9 to Cookies for Kids Cancer.  They also are offering the cutest ice crem cakes... they look like conversation hearts.  You can call the store and pre-order a cake for the weekend and the best part is that 50% of the sales of cakes will go to Cookies for Kids Cancer--  Please share this with friends--- We hope to see you at Ben & jerry's--- Grier and the rest of our crew will be getting an ice cream treat in between soccer games....


 That is it for now-- I am going for a walk--- I need some sunshine and fresh air to clear my head--- It has been two really long days... Grier has done really well... but I can not stop hearing the crys from him and the 8 other kids-- Yesterday was a really tough day as I listened to a Dad yell to his child  to wake up and open your eyes-- As I said before you never know what will happen.... and I am reminded that could be any of us yelling those words.  I hope his child is OK... I know she had a severe reaction during 3F8 -  HOPE for a CURE .... these kids are too little to deal with this.

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The Queen City Reigns

Filed under: Bake Sale, Donations, Online donations — admin @ 10:38 pm February 8, 2010

“If it takes a village to raise a child, it’s going to take the world to find a cure for pediatric cancer.”

In Charlotte, North Carolina, for a few hours on a rainy Sunday in December, it felt as though the whole world came together to bring an end to pediatric cancer, all inspired by one little boy with one big spirit - Grier Christenbury.

A happpy snowman greets Charlotte bake sale guests.

Grier, a  5 year old Charlotte native, was plunged into the world of pediatric cancer at age 2, when he was diagnosed with stage 4 Neuroblastoma. Quickly Grier’s family’s focus shifted from soccer games and school to chemo, radiation, surgery, clinical trials, and most of all, keeping the cancer far, far away from his growing body. And just as quickly, the Christenburys learned of the need for funds for new and improved pediatric cancer treatments. They hoped for new options with fewer long term side effects and risks as well as higher survival rates.

Happy hosts and hungry kids.

But hope alone is not enough in the world of pediatric cancer. Hope needs action. So, the Christenburys threw their support to Cookies for Kids’ Cancer to raise awareness and funds for pediatric cancer research. Grier’s mom Amy hosted one of the first Cookies bake sales in 2008 and planned to host another in late 2009. Then Grier was unexpectedly thrown back into battle last fall, and the focus, once again, became keeping the enemy at bay.

Nothing draws a crowd like kids!

When friends in Charlotte asked what they could do to help, Amy answered, “Host a bake sale.” And, did they ever. Four weeks, hundreds of sponsors, one radio interview and two local news features later, Amy’s friend Lesa Helbein and her team of tireless (and sleep deprived) volunteers pulled off the biggest single day bake sale in Cookies for Kids’ Cancer history, raising $15,000 in just 4 hours.

Cookies + Kids + Decorations = Happiness

The pictures tell the story of the holiday spirit that reigned over the Queen City on that rainy Sunday. Cookies, cupcakes, and kids with smiles greeted Charlotteans who ventured out to support the event, in the end proving that if we all do a little, together it adds up to a lot.

Kids enjoyed climbing on the fire truck.

Not every bake sale is this big, with this many supporters. But every bake sale - every single one - is crucial to the world of pediatric cancer. Every penny matters, every dollar helps. Rally the people of your village and register your upcoming bake sale today

Just a few of the hundreds of Polka Dots cupcakes!

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Monday is almost officially over..... It has been a really long day... all 3f8 Mondays are long...!  You just do not know what is going to happen --- it does not matter how many times you have done it.
Grier did ok-- lots of pain.  He did lots of screaming and his breathing was controlled by a breathing treatment and an oxygen blow-by.  He requested lots of hot packs on his back and tummy-- After the hour was done he fell asleep and rested well.  We made it back to the Ronald by 3-- he slept until 7:30--- He is still wide awake now ( almost 10)--- It was a hard day in all the rooms as we listened to the staggered screams.... it is really unbelievable what these kinds go through-- (& their parents)

Grier did have a CT this morning before the antibody treatment.... he stayed still and I was beside him talking about whatever I could think of to distract him--- I don't even remember --  I liked this room better because I was able to wear the lead shield and stand right next to him and hold his hold as the bed moved him through the "doughnut machine"--- We do not know anything from the scan yet--- I hestitate to say no news is good news because I thought that last August and we know where that got us-- Actually forgot all about the CT when we were in the midst of 3F8--- I guess that is a good thing.  Believe it or not but the anxiety from 3F8 makes you forget all about scans--

Tomorrow--- He will only have 3F8--- no scans.... Wednesday he will have an MRI at 11:30--- and then will have 3F8 afterwards.  We will be at the hospital all day on Wednesday which may be a good thing since NY is expecting 12 inches of snow..... Can't wait to take a picture of the stroller in the snow!!

That is it for now--- 4 more days--- or as Grier says... 4 more shots!

cycle 4 .....

We are in New York--- Our flight went as planned--- actually got in the City by lunchtime....Grier chose to go to Cafe Luka....after lunch we had plenty of time to make our rounds to get some supplies for the week- Food Emporium for cheez-its, Cherry H2O and clorox.... after that we headed to Duane Reade for some Smart Water :) Most of this afternoon was spent playing Ping-Pong in the playroom.... I tried to get him to go to Dylan's Candy Bar but he said he did not want to walk that far.... hmm... last time I checked he always rides in his stroller!!  It probably was a good choice not to go-- it was about 20 degrees and windy.....
Our storage box was here when we got here --- it makes it so much easier to make our room our home for the week.... beds are made... actually the two twins are pushed together to make a King :)--- Grier is fast asleep in the "crack"---
Tomorrow we will head to MSKCC @ 7:45-- he will need to check-in, get his port accessed, a finger stick, a physical, drink contrast for a CT @ 10am--- After the CT we will start the premeds for 3F8--- It will be a long day....He told me tonight that he was glad he played ping pong today becuse he can't hit the ball when he has a tube in his port---
The good news is I am on the internet...... Thanks Jeanna.... I got it to work :)
Keeping everything crossed .... hoping tomorrow and the rest of the week goes fast and peaceful-
Amy

Grier eating "flakes of snow" -- look at his hair!!!

I just found out that Grier is HAMA negative ( negative is good-- means he will continue on the clinical trial) so next week our trip to MSKCC will include 5 days of 3F8 and a CT, MRI, MIBG and 4 Bone Marrow aspirates--- Whew... it makes me tired and light headed just thinking about all that he has to do next week-- Grier will start his shots to increases his white blood count tonight so I am sure that is when his reality will set in--- :(

Other than trying to "live" normally... not much has been going on here-- that is a a good thing!!! As you can see from the picture we got to see snow and for some reason Grier always trys to eat it :)  I know some of you are laughing but the grass was covered when it was all said and done --- actually is was more ice & sleet--but the kids had a snow day so that is all that matters to them :)  I just had CABIN FEVER!!!! I am so glad the sun is finally shining today.

Jeff, Grier and I leave Sunday morning for NYC--- we will get there in time to unpack and do "something" in the city before our crazy week starts--- And of course we will watch the Super Bowl--- :) I still can not believe it was two YEARS ago we were doing the same thing in NYC--- watching the Giants win and celebrating Valentine's Day-- We will fly home Saturday unless we can get a flight home on Friday evening with Corporate Angels--- I want to be home in time to watch Grace and her team play soccer on Saturday---:)

If you do not see updates on the blog or caringbridge-- remember that I have to get a password from the Ronald and it takes awhile- I will update on Facebook :) - (it is easy to do on my phone)--- as soon as I know anything from his scans I will post it--- :)  Pray for  clean scans and an uneventful week of 3F8.