Friday, March 19, 2010

:)

The last few weeks have been great for Grier.... he has enjoyed every single second of being 5 1/2 --- school, playing with friends, singing songs, playing outside, shopping for T-ball equipment, --you name it he has done it with a smile of his face--
There is not much medical news to update you on--- YEAH!!! He has just started round 4 of Accutane and so far so good--- he is super about taking the pills and letting me put all kinds of lotion on him--- 2 more rounds to go -- Next week he will have to get his port flushed ( not his favorite thing to do but we will go after school so it does not rock his morning!)--- You have to do that once a month if you do not use it-- and believe it or not it has been almost a month since it was accessed for the HAMA test.

Spring Break is fast approaching at our house and everyone is very excited to go somewhere together--- well.... almost together.. Jeff is going to have to stay and work.  I am sure our week in Florida will fly by and before we know it Grier and I will be on a plane headed to NYC for a week of 3F8-- We are lucky to have some help/company that week--- Anne is going to meet us in NYC on Sunday--- Jeff will be home with Hayes and Grace helping them get back into the routine of school and sports after a brief vacation-- One thing I have learned from being at home for almost a month is that Grace likes to have one of us here at home if we are in NYC-- so.... that looks like the plan from now on--I am going to have to get back to going to NYC solo with Grier--- either that or get a job with insurance so Jeff and I can switch off-  She did say she would like to come but I am not sure that is the best idea-- there are MANY hours spent in the hospital..... and I know she does not realize actually how boring that will be -- besides the fact that she would not want to watch Grier have 3F8 nor would I let her watch so she would be by herself in the playroom- 

Life has been pretty good while we have been home.... but I have read enough caringbridge pages to know we are lucky right now--- I guess that is why I tend to "live for today" and not do too much planning.... I can not believe that we are almost on our 3 year anniversary---- THREE YEARS of living in the UNKNOWN--- WOW--- I know so many things now that I wish I knew 3 years ago---- and some that I wish I never knew--- more on that later........

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GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's