MORE DETAILS TO FOLLOW... was the last email I got about the possibility of doing 3F8 ( a week long antibody infusion that is quite painful)  I went about my day thinking there could be a possibility to start shots today and fly to NYC on Sunday for the week.  I did not know for sure but that was the mode I was in.  I had to get to the DMV to renew my license because it was going to expire on Monday... and TSA had already warned me I only had a few more days with my ID being valid when we went through security in LaGuardia.  That was top on the list today... and after waiting and waiting I am renewed but the card will not be in my hands for 8-10--- I even asked if I could pay more to express ship it--- He said - NO-- oh well!


Later this afternoon the details came in.... He wants to put him on the schedule in 4-5 weeks... His scans need to be done before.  Grier is already scheduled for scans in a month.  We will continue the accutane until then.  Another option was to give him high dose chemo after accutane... but I am sticking to the need vs quality of life.  I can not make him feel like he does when he is on high dose for nothing.... if there was even a question or a statistic to help me change my mind I would but there is nothing.... 4 weeks.... we will know more.




Good thing I did not express ship the license.... because plans changed a few times today....