Wednesday, July 6, 2011

We woke up on Saturday morning and decided since we had NOTHING on our schedule... or actually on the kids' game schedules we would surprise them with a quick day trip.... This really never happens... so we packed up, found a hotel room and got some braves tickets and were on the road by 11am! It was a fun trip... ok, a little exhausting but fun because we were all together-- I told Jeff 24 hours was all I could handle in tight spaces like that--- and I wasn't kidding!!!


The calm ride :)
Turner Field-- HOT!


26MPH-- throwing batting practice :)

Georgia Aquarium





The fourth of July was fun as always.. I am not sure why but that is one of my favorite Holidays....  I saw the fireworks on TV from NYC and I think we need to make a trip there next time... :)


On Tuesday, we woke up early.. and went to clinic for some blood tests.. we went early so the results could be faxed to CHOP and we could find out if Grier was ready to start MLN on Wednesday... well, after much delay... the LAB was BUSY- :) we finally found out that Grier's counts were not heading up but DOWN again.... We still had to wait on his ANC because that number was not ready yet -- so we waited and waited... FINALLY I heard that is was 300-- he was nutrapenic again!!! He needed to be at least 1000 to start the drugs. After a few emails to CHOP -- they called to assure me they are not worried about these delays... and the fact that his counts are on a roller coaster ride!!!  They mainly want him acting well and told us we can wait it out - So, Grier and I go back to the clinic tomorrow for a CBC to see what the numbers tell us tomorrow!

Other than our spur of the moment trip, fireworks, and clinic visits, the other big news was that Grier lost his second top tooth... so he has a cute gummy smile to go along with his dimples!

He found the SHARKS!
We actually were scheduled to be in Philly next week for an MIBG scan... but since we have had these delays that schedule is going to have to change. Hopefully we will have a start date soon for MLN....
( as always.. go to gogriergo.com for pictures....) I need help with moving this blog to wordpress... ANYONE???? Needs a little updating :)

toothless smile!

No comments:

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's