Let me start by saying-- WE ARE DONE WITH ALL 5 TESTS! Yes... we are excited-- it is hard to describe but these are not easy tests-- I know Grier makes them look easy but they are tough to watch him go through and then to add the worry about what these tests may or may not find is EXTREMELY stressful- Ok-- with that said... so far 3 of his test results look good-- we only have an official reading of 2 -- the MRI and the CT-- and they are negative!! Negative in the cancer world is good-- :) The preliminary of the MIBG looks good but the official reading is not done yet-- This is the test that stresses me the most-- I am not sure why because they all can find something-- but this is the radioactive dye that will attach to NB cells and the screen will light up if they are present- We still have no word on the urine test and the bone marrow aspirations-- This will be next week some time-

Grier did great today-- we did have an issue with his IV again-- I think they put in a very small line ( because he has tiny veins!) and it makes things run slower into the vein -- so when they ( or actually Grier ) was pushing his white medicine into his IV -- it was stinging and he was uncomfortable-- also it took a long time to get him to roll his eyes back and become limp--- We have not had this problem before because we have always had a port-- So.. the IV experience is new to us and we need to come up with a better way to deal with it next time.

He had his MIBG at 10-- They brought him up sleeping at 11:30-- and he went straight into the procedure room for bone marrows-- We finally saw him around 12:30-- he was very groggy and grumpy-- Understandably so-- He also received the first round of immunizations-- so he is SORE-- 4 bone marrow sites-- and 3 shots made him slow down today!

We left the hospital and came back to the RMDH -- he was stirring a bit and when asked if he wanted to go to Johnny Rockets for lunch .... he perked up a little and ended up napping the whole way there-- The weather was great-- it felt so warm- 40 degrees and we were able to walk after lunch -- we ended up going to FAO and Grier walked around a bit and got a new tiny cat-- On the way home we had to stop into Dylan's Candy bar-- and then we went back to the Ronald--

Now-- we are beginning to pack-- we will fly home tomorrow at 10-- and should be in Charlotte by noon---

Thanks again for checking in... and leaving notes-- between the blog and facebook I felt very connected! I will update when we get home-- or as soon as we hear more results-