WOW!! This is my 300th post--- I know it is LONG overdue but I have not been in the "mood" to write an update-- :)

Grier kept us on our toes during the Christmas Break--- you all know about the CT scan and the waiting on those results -- then he developed croup right before New Year's Eve-- and that sent us to our pediatrician's office-- ( which was a good way to ease back in since I had not been there since the day we were admitted in March 2007-- really hard to believe-)  On one hand it was nice to be in a normal doctor's office with all the people waiting in the waiting room coughing-- but on the other hand I was used to a more sterile environment of the Hematology/Oncology office-- I kept looking for a mask for Grier to wear--:)  After a round of steroids-- we had to head back in because he was not getting any better--he had a chest xray and got a different medicine and finally by the weekend he started feeling better and the coughing slowed down-- Whew-!  We were dragging around here that week- But in his typical fashion he was great at the doctor's both times and just rolled with the waiting like a champ!

He started school again and was thrilled-- he could not wait to get back-- He is still singing Christmas songs and occasionally I hear him try to make Twinkle Twinkle Christmas Star into an Easter song??  I know some of you are laughing since you know he sang that song as our blessing for a few meals over the Holiday Break!! 

He had a scooter accident last weekend and again had the "Rocky Balboa" look to his face--- He was doing a "trick" on his 3-wheeled scooter-- hmmm.... I think the next trick is to learn how to catch yourself with your hands when we fall!!  All typical boy things--!!

We leave for NYC on Monday the 19th-- we will be there all week doing a full work up--  Grier is excited to go-- he loves to play the arcade "boat game" at the Ronald-- I am not so excited-- but I will fake it for him-- can not believe he is looking forward to it!  He just goes knowing we are going for a check up with the NY doctors-  We are flying on USAir-- I decided a few months ago not to gamble and wait on Corporate Angels-- Maybe when the corporate world recovers-- I will feel better about that-- But for now I need to know how we are going to get there and when we are coming home-  The weather is going to increase the number bags that we usually take-- We will be packing for COLD weather-- :(  I need to go find our NY stuff that we had last year to keep warm... especially that stroller cover and wind guard!

I will update from NY-- some days there is nothing else to do as we wait for him to recover from anesthesia after each procedure-- we are going to try to do the CT without the "white medicine" and maybe the MIBG-- still not sure he can lay still for that long ( an hour)-- but we will see--

That is it for now-- I will not update until we get to NY on Monday- That will be here before we know it-