Grier is starting the first of 2 cycles of high-dose cyclophosphamide-irinotecan-vincristine today ( we have been there since 10am so we are still waiting for pharmacy!)
--- I am a little nervous about the irinotecan because it causes a lot of diarrhea- and when we did chemo 2 years ago he was not potty trained so we will see how it goes- The plan is to stay 2 nights and leave after the infusion is done on Wednesday-- then go to the clinic on Thursday and Friday for the rest each day-- We can not do the cyclo out patient because it fries your bladder so you have to make sure you are peeing enough -- this is why I do not want to start this late because he will be up all night--- I guess that is a lost cause now- the infusion is 6 hours!

Grier made the transition back to Levine better than I expected-- He wanted to go to school and I told him we could not go today and he said what about tomorrow??? And then I broke the news that we had to go to the hospital to get some medicine that will get rid of all the bad cells that we can not see-- And then the tears came.... not really because I said we were going to have a sleepover there but because he knows the medicine comes out a tube and he knew his "button" aka mediport would have to accessed with a gigantic gauge needle and he HATES that-- So I had the sales job on-- we were going to play wii--- watch movies... do art.... and I would even get him a goldfish when we got home!! ( The goldfish was from this weekend when Grace asked if she scored 2 goals in soccer would I get her a goldfish--- I told her sure ... :) I was pretty sure that was a safe sure since she is a defender!!) So, Grier got on the goldfish bandwagon!! I guess it could be worse--- a puppy??? Ha!Ha!

After the port was accessed he had to get a flu shot--- so it was a tough morning and we had not even been to the hospital yet---

That is it right now-- try to update tonight--- right now I need to help with homework-- ( Grace not Grier :)

Pray for no side effects--- vomiting and such!!


ps-- I did teach Grier a new phrase today---- with the advise of another warrior... Liam's mom--- Today when he was so upset about all of it I told him he had a right to be mad and he could scream "THIS SUCKS" when he felt mad about going to the hospital and the doctor all the time-- so as we pulled into the parking deck--- I told him to give it a try--- and he squeaked out a THIS SUCKS--- and I told him he had to be louder than that!!! He just smiled and I told him I was OK with him saying that !!! Sorry if you don't agree but it really does suck that kids go through this-!

pictures are from this weekend--- scootering a week after surgery and sporting his new soccer uniform!!! ( Thanks Thomas for bringing it to him)