Grier feels good-- I would say great but he gets waves of feeling queasy and has had some headaches that bother him. These side effects are totally different than the first round--- I am hoping this goes away this weekend as we get away from the poison that has run through his little body all week! He has really surprised me this week with the way he has taken this new routine and gone with the flow--
We are now on the part of the schedule that we call "fever watch"--- his counts will drop to 0 and we will have to start giving shots again on Wednesday to increase his counts-- we will also have to monitor his blood and platelet counts because he will likely need some transfusions- MOST likely we will have another stay at LCH if he gets a fever--- but we can always hope his counts will recover before this happens! We will probably find out Monday when we go to NYC for scans-- and then what the plan will be from there-- I am anxious to see what they say and see if Grier can get back to being a normal 5 year old--
That is it for now-- we are going to enjoy the weekend !
Thanks for checking in and THANKS for signing up for the food tidings plan
--- I talked to Jeanna and we will add more dates as I find out the next plan of Grier's treatment-- especially if staying in NYC for a long period of time is required-
Amy
2 comments:
We will certainly have you in our thoughts and prayers as you head to NYC. Love, Nancy Williams
We will certainly have you in our thoughts and prayers as you head to NYC. Love, Nancy Williams
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