Grier's 4th day of chemo was good--- He went to school for half day and was able to buy lunch again.... He likes to "buy" the lunch but does not like to eat it :) Everyone that has seen him this week is shocked he is getting chemo... I swear he is.... One of the nurses rode by our house and saw him going full speed in the front yard yesterday afternoon.... and she said she was so surprised because she was the one who gave him the chemo and knows he has a needle in his chest-- I am not sure if that was a subtle reminder for me or what??? I asked her if it is normal and she said NO-- usually the kids are tired and have side effects-- and some have side effects before they even get to the clinic... mostly due to anxiety about what is coming... but Grier just walks in ... and gets down to business... he asks for the "teams" and starts coloring as they start the drip of poison and I put my gloves on to touch the pills that I put in his mouth!
Just a little more info since it is still September :)..... I am often asked why Cookies for Kids Cancer....?? Well, I have had to choose the organization that I want to support.... and it is very important to me how the organization spends the money they/we raise.... I want 100% or close to it going to research... and I don't want them spending money of administrative costs... Cookies does just that... they fund promising clinical trials that are sitting there waiting but just need money... they are not all for Neuroblastoma but they are all for pediatric cancer. There are so many organizations that use our "bald kids" to raise money but give less than 3% to pediatric cancer. So... before you send money somewhere or do a fundraiser you might want to ask how much money will go towards children... ?
The American Cancer Society spends a small portion of its fundraising dollars on childhood cancer. So all the Relay for Lifeprograms that involve kids in schools, while wonderful, give very little to pediatric research or the post-treatment support needed for young survivors.
***Other groups who are not so well known focus only on childhood cancer fundraising: Curesearch, the outreach arm of the Children's Oncology Group, St. Baldrick's Foundation, Alex's Lemonade Stand Foundation, National Pediatric Research Foundation and other smaller organizations across the country.***
ok-- I have asked a lot in the past two days... but here is something that does not cost you a penny... Pepsi is giving a grant of $250,000 and the top two non-profits will "win" it---- Please take time to log in using a computer and vote for Arms Wide Open Childhood Cancer Foundation. Here is what they are all about and how they plan on spending the money if this organization wins...... This is very easy to do--- and if you don't want to do it online then you can just TEXT PEPSI (73774) and then Text 102653
This clinical trial will help kids like Grier.... and the sooner it gets to the clinic in NYC the better... because Grier needs options like this...
Arms Wide Open Childhood Cancer Foundation is working closely with scientists, researchers and doctors;who are pioneers in the pediatric cancer field, who are on the forefront of bringing many alternative therapies into clinic which could prolong the lives of children diagnosed with Neuroblastoma until a cure is funded. Right now only 30% of children diagnosed with Neuroblastoma will survive, but because it is an "orphan" cancer, research funding is limited as pharmaceutical companies do not see the efforts as profitable. Recognizing that children should not be viewed as a profit, but, rather, our investment, Arms Wide Open raises money for alternative therapies and actual treatments these children so desparately need in order to survive.
How will the 250K be Used?
Budget Notes: The need is $600,000 in funding to bring the next treatment into clinic. The new treatment is ten times more effective, less toxic and much less painful for the children than the current therapy they are receiving; with this $250,000 grant we will be half way there. Vote to save a child's life!
$ 100,000 Every dollar will be donated to research
$ 100,000 to contract a company for production
$ 50,000 of this new antibody therapy that will save lives.
The Direct Link is...
(you don't have to register if you text)
http://www.refresheverything.c
Text is : TEXT PEPSI (73774) and then Text 102653.
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