Oh my... this week was CRAZY... The eye appointment turned out to be needed... Grier basically can't see... seriously! I have been feeling very guilty especially after being told how bad his eye sight is-- one eye is worse than the other so the "better" one helped... but it still does not make me feel any better! He has picked two pairs of glasses out.. they are on order- and they are THICK! He also has to wear an eye patch 2 hours a day to try to strengthen the other eye.. this has been a little hard because we are covering the "better" eye-- and he is frustrated because he can't see to do what he wants to do in the 2 hours... I know it will get easier... but WOW... I didn't expect any of this... Our week with one appointment turned into a week with 3 eye appointments... 2 of which we spent shopping for eye glasses! Anyone who has shopped with Grier knows he looks at everything and when he decides there is nothing that can change his mind. He found NIKE glasses at the first place we looked.. We compromised on the color... the sample was BLUE.. and I said OK, if he would get WALNUT-- He agreed but later that night this was our conversation..
Grier~ Mom, Do I have to wear my glasses on the playground?
Me~ Yes
Grier~ Well, you know I might lose them ...
Me~ no... you will be fine.. don't worry about it
Grier~ Mom, when I run they might fall off and they are the same color as the MULCH!
I also heard from our doctor in NYC this week...and the verdict is to do accutane again... UGH!!! I hate that stuff but studies show it fights off NB... so at this point I feel like I can't argue about it-- because I would rather do this than NOTHING~ even though the side effects are awful.. DRY skin, bloody noses, headaches, muscle aches, and crazy MOOD swings- But I am not done pressing the issue of why we can't do 3F8-- and looking into what CHOP has... I really did not want to have to fly to Philly with Grier just to talk.. but I may at this point-- I am still trying to get more info. Actually not sure when to squeeze all this in because NYC has actually changed our scan schedule.. instead of 12 weeks -- he wants Grier scanned again in 8 weeks.. so we are already on the schedule for March 17th-- not much time in between scanxiety this time! I was really worried that they are watching something but after talking to our CLT clinic... all scans looked fine.. urine and LDH was normal... so I think he is just keeping a closer eye on him....
Yesterday we ended the week at the Urgent Care for Grace.... she hurt her wrist playing goalie on Thursday night... and on Friday she still was complaining a little.. so for peace of mind I took her for an x-ray. She has a bad sprain... it is not broken and it is in a splint. She said... MOM, this has been a busy week at the doctor's office.... yep... she was very right...!
I finally got my car serviced... and now I just need to make it to the DMV...
Not sure when I am going to make it there but it is on the list.
Grier has an appointment with Dr. McMahon on Monday afternoon.... he needs some blood work done before he starts accutane.
If anyone needs an idea for Valentine's Day... On 2-14-11 Ben & Jerry's in Charlotte (Woodlawn, Fairview, and Myers Park), Gastonia and Davidson will be donating a 25% of their sales to Cookies For Kids Cancer. If you order an ice cream cake they will donate 50% of the sale... They have really cute conversation heart cakes.. we got one last year when they did this and it was the perfect Valentine's Day treat. Check out www.cowolina.com for more information and locations. Lesa and I are flying to NYC for the day so we will not be there so we will need every one's help to make this successful. Please add this to your calendar and share with your friends....
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Saturday, February 5, 2011
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
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