We made it home this morning by 10:30... Grier was excited and starting talking a little more as the time got closer to going home. His chemo was only 30 minutes today so as soon as it finished we left... well, we did have to get discharge papers and figure out how we were going to get all our stuff to our car in the pouring rain in ONE trip.... both of us opted NOT to wait on guest services... so Grier said he could walk and we loaded UP the stroller.. it was quite a site!
Last night went as well as it can when they are giving him so many fluids... it just means there is a lot of peeing... at one point he said I am tired of going to the bathroom! Neither of us slept well, between 2 bed changes in the wee hours of the morning and the hourly "MOM.. MOM.. I have to pee" it was a long night! I was awake when a text came in from my NYC friend, Gretchen... I think it shocked her when I replied at 1:30am! Actually probably not.. she has experienced the hospital sleep... so she knows it really does not happen!
This afternoon, Grier and I watched a movie and we both fell asleep... he is in good spirits... taking his medicine well... I think we are going to try school for a little while tomorrow... he has an appt. in the afternoon for the last dose of chemo for this week.. He wants to go so I am following his lead and letting him enjoy his time with friends... we will be on "house arrest" soon enough when his counts bottom out so as long as he feels ok he can go and have fun!
Thanks for all the cards and well wishes... he has been thrilled with all his orange surprises.. :)
I am so happy we survived this hospital stay... actually not only survived it but for the most part we had a "perfect experience"-- everyone did what they said they were going to do! We had some great nurses... especially Chante' aka "scrappy"-- she started our stay off just right!! Even the girl from food service surprised Grier with grapes this morning... he did not ask for them but I guess that sarcasm works sometimes... !
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Wednesday, March 30, 2011
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
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