Just a quick update to say sorry to all those that have called or email me lately.... I have been swamped with planning our Philly trip--- almost to the point it is comical.... Today I had a call from corporate angels... they had a flight to offer that was from Charlotte to Teterboro, NJ-- after a ton of questions to them about how they thought I should get to Philly from Teterboro I decided to take the flight.  The ironic thing was that they would not let me say "yes" and then look for transporation... so I took the leap of faith and said "yes" knowing they do not like us to cancel on them and googled travel from Teterboro to Philadelphia. Corp Angels said "Just take a train to Philly.... well, that sounds very easy and if this was any other kind of trip other than MEDICAL that might be fun... but after looking into how we were going to get to the train station... switch trains in Trenton, NJ and get a cab from the Philly train station I had to say ENOUGH! This was all going to happen late Sunday afternoon... so I decided to look into plan B -- a car service... after a few calls I found one that will pick us up in a Hybrid and drive us to the RMDH in Philly-- this is assuming we get the OK on Sunday morning that we can check in-- :) I am being very sarcastic because I find some of these helpful rules to be nothing other than annoying and stressful.... and considering we are not on a fun trip... I don't think any more stress is needed... So... so far we have a way to get to Philly.  Now we need to wait until Sunday morning to see where we will sleep~ Thanks so much to everyone that has offered contacts for the Starwood Hotels... that would have been great if there was a room available for the time we are going to be there... I knew I was in trouble when I was on the phone while they were checking all the hotels and she says.. "WHAT IS GOING ON IN THIS WEEK IN PHILLY?"- booked is the word of the day....

Besides travel arrangements I have had a million phone calls from CHOP... which is good... I have no idea where to go.... I am feeling very lost and alone as I navigate away from Sloan.  Today I answered all kinds of questions from anesthesia... and I finally just told them... Grier likes to push his own "white medicine" and I am holding him as he falls asleep.... I think it stunned her... but the fact is he has done this more times than I can remember~ She said I would be in the room with him as he went to sleep... so all the other questions were routine... YES.. if anyone is wondering he was a FULL-TERM HEALTHY BABY and other than stage 4 Neuroblastoma times 3 relapses he is pretty normal! Ugh... that question always makes me think did I do something to make this happen? As you can tell I am over this craziness today... 

More to come later-- I have a purple storm trooper soccer game to attend... and then I will do an update on all the bake sales going on this Month.... :)