Today was LONG!!! Grier and I left around 8:30am and got home around 5:30-- Needless to say we are both tired--
We had to go to clinic for a type and cross for blood-- before the 9:30 appt.-
After WAITING forever ( the took us back at 10:30)--The first part of the MIBG was drinking a TINY bit of liquid-- I was worried about him getting it down but when we mixed it with juice it was not even a teaspoon! This took about 5 seconds! This medicine protects his thyroid. Then we had to wait an hour-- we went outside and looked at the ducks on the greenway-- After the hour, we went back to nuclear medicine and WAITED--- finally they took us back for an injection in his port-- it took about 2 seconds! And then we went back to clinic and he got a blood transfusion and a platelet transfusion-- Whew-- That was a LONG day- I bet you can tell that I was not too happy about all the waiting!!! We would have been home earlier if nuclear medicine could have been more efficient-- and we would not have had to wait in a lovely waiting room when he is .1 for his white blood count & -- no immune system!
Tomorrow- he will have to drink the medicine again an hour before we go to CMC-- then he will have anesthesia and they will do the scan-- it should take a few hours-- we will go to recovery and then go home- We will find out tomorrow if we go back on Thursday to do it again- and they said today that it could be possibly Friday too-- that was the first I heard that--
As always-- check out my hopebuilders page-- and if you want to donate to Levine Children's Hospital-- you can sponsor me !!! 100% of all money raised goes to LCH!
www.register.hopebuilders5k.org/goto/Amy.Christenbury
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
2 comments:
Amy,
I am so sorry you and Grier had such a long and trying day. Sometimes the powers that be don't quite understand waiting with a small person, muchless one with no immune system in a room full of nasty hands and germs. I am hopeful that tomorrow will be a much better experience for you both...that being able to stay home beforehand will help tremendously! I will be thinking of you both all day and praying for a speedy visit and quick trip back home!
I'll be driving to CCDS tomorrow as Adam wants me to walk him in on his first day of school...just about fell apart going to bed this evening...sobbing that he wanted me to take him to school. What to do? Walk him in, of course! I should enjoy it now as next year he won't want anything to do with me and in a few years will ask me drop him off at the corner of Fairview & Carmel so as not to be spotted by his friends.
Look forward to hearing the news from this weeks' tests and always look forward to updates on Grier's general health. Will hope to see you soon, now that Abby & Adam are back in school and Mitch is on his way in a few weeks.
Love & Prayers...
Dina
So sorry you had such a long day. Hope today is a little better and that they are quicker. We will pray extra hard today and keep you in our thoughts.
Love to you all,
The Paine's
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