We made it through another day--- We left the RMDH at 6:45am!!! That is early for us :)
Good thing we are in a loud room because the alarm clock did not go off!!! I woke up to the sounds of NYC @5:30am!

Grier did great with his procedures-- 1 @ 7:45 and then another @ 1:45-- He was funny after the first round-- we came back and he kept asking for just 1 goldfish cracker!!! Finally we decided he could bring the whole bag with him so he could eat them when he was done with the 1:45 session!!! And guess what-- he slept until 4:00! I am also fasting until he can eat so I was ready for lunch and he was sacked out in the stroller!! I went to Lenny's and got us both a sandwich and he decided it smelled bad when he woke up!!! OH-- Grier the food critic!

Tomorrow will be much of the same-- I do hope he sleeps better tonight-- he was very restless and gagging a bit--- I asked them about it today and they said it was probably not the radiation yet-- The Dr. said it could have been just one of those nights he could not sleep--- Great!

We went to the mail box today-- and opened it up and he started singing... "we just got a letter" from Blues Clues-- it was funny!

We did the HAMA tests today-- it is just drawing a vial of blood-- we will know the results by Tuesday afternoon--

Grier told the nurses that the Giants are going to win the Superbowl-- I did not even know he knew they were playing!!! He also told her he was really good at golf and baseball! He is very talkative with them as he walks into the room --- he pushes the white medicine--- gets "dizzy" as he says and comes out of it OK-- Whew-- It could be a lot worse!

1 down--- 13 to go!!!

OK-- I promise I will not count down each radiation treatment--- but we do have 1 done-- and 13 more sessions to go!!!
We were up early this morning--- our ronald room is street side so you hear everything going on -- You can only imagine!!! Grier had an apple juice and then we just waited around until 11:00 -- I think not eating after midnight every day will be a challenge-- It usually takes him about 10 times asking for something to finally understand--- you can eat after we are done at the clinic!!!

We met with Ursula-- we actually love to see her-- She is the nurse practitioner of the NB team-- She cleared him for anesthesia and then we moved to the next room-- We found out that Grier will have his Hickman (double lumen port) removed next Friday-- They will replace it with a mediport-- it will be under the skin and when he is not accessed he will be able to take a bath-- swim etc!!! There will be no tubes hanging down from the outside of his body!! It is a surgery to do all this but I am kind of excited-- we will not have to do dressing changes at home, flushing lines etc.-- He seemed to do fine with his radiation set-up today-- We will see if we see any side effects the closer we get to the end of the treatment-

Tomorrow-- We have to be at the clinic at 7am!! He will have some blood drawn to do a HAMA test-- This will tell us if he is OK to continue with 3F8 the week of the 11th-- We do not want a high number because he will not be able to continue 3f8 until the HAMA goes away! After that we will head down for the radiation treatment w/sedation-- it should take about 10-15 minutes and then we wait until 1:00 to do it all again---After the second treatment he can eat--

I am sure I have confused everyone--- Oh well-- it is a crazy schedule for the next 10 days!! Grier is very confused-- today at 3:30 we went to get lunch and he kept telling me he had not had breakfast-- well-- he was right!! Breakfast will be out of the picture until the 9th!!

Grier and I are here by ourselves right now--- My mom will come this weekend and stay until the 9th-- Then Jeff will come and stay with us until the 15th or 16th-

We are here-- FINALLY!!! Our flight time was changed at least 3 more times after I made the last post-- the last time they said was 5:30-- so we had to be at the hanger at 4:30-- not too much time to get ready and say good-bye to H &G-- But we made it to the hanger on time! We ended up not leaving Charlotte until 7 anyway!!! AHHH!!!! After many calls to the car service to change the time he was to pick us up--- he finally got mad!!! But he said he would wait since the car was already dead aka "out of service" for 5 hours!! When we arrived in Teeterboro--- a stretch limo was waiting-- It was something out of pimp my ride!!

It is 10:30-- and Grier is eating dinner-- and I am ready to call it a day!!!!!!!! We are back in the tiny room at the Ronald-- same one we were in before Christmas!!! I may have t0 see if we can get moved tomorrow---

Grier is ready--- I am getting there!

Grier keeps asking... Is time to go to NY yet??? AHH!! I keep telling him we will go when it is dark outside---we were suppose to leave at 8:30pm but just got a call from the Corporate Angels??? and they said our flight has been moved up-- whew-- I thought they were going to tell me it was cancelled! We are leaving at 7:00--- and should arrive in Teeterboro around 8:30- We will be at the Ronald late tonight--

We are going on the plane with another NB family--- Isabella and her mom--- Isabella and Grier are around the same age---

I will update later tonight--

Is it Sunday already??

The last few days have flown by--- Grier is doing very well at home!! He likes to play in the yard, hitting baseballs and driving his truck- We all went to Grace's basketball game-- which was fun-- it is hard to believe that going places as a party of five is not the norm at our house anymore--!! Sometimes I even catch myself at a restaurant counting!! Also, he has discovered he has hair coming in!!! You should have seen him go to the mirror and look at the black shadow on his head! He said that was cool!

We do have a plan right now--- Grier and I will leave around 7:30 on Tuesday night to fly back to NYC-- We are scheduled on Corporate Angels-- That used to not make me as nervous-- but now that we have had flights cancelled a few times- it actually stresses me out!!! OK-- I admit it!! I do get stressed thinking about all this-- We will get to NY late Tuesday night and go to clinic and get cleared for anesthesia on Wednesday morning sometime-- He will have his radiation set-up after that and be done with the first round-- Thursday through the following Friday will be twice a day-- 7:30 am and then again around 1:30-- Then we will have the weekend off and start 3F8 again on the 11th!! Probably home around the 16th-- if everything goes like it is suppose to-- :)


We have been busy but have had time to slow down too-- Jeff and I had a great low-key night with Katherine and Andy-- And I am going to a movie with some friends today--

***On a side note
I read something the other day and I wanted to adapt it to our life-- So many people tell me they do not know how we are doing this-- and I just say there is no choice-- You drop everything and just do it-- I’ll admit…sometimes this is tough. There, I said it. OK…I’ll add to it…sometimes it’s really tough. The stress of trying to act normal in front of your child in a completely abnormal world; the stress of waiting for test results; the stress of keeping up with work and a house so many miles away; the stress of not letting anything fall through the cracks from grocery shopping to bill paying; the stress of watching your child writhe in pain during antibody treatment even though you know that treatment is helping him; the stress of having to hold him down to get a painful injection; the stress of hearing about other children who are not doing well; the stress of not feeling like you’re doing enough, fast enough to help find a cure; the stress of trying to let things just roll down your back and not let them get to you; the stress of answering questions all the time about NB trying to not let Grier, Hayes, or Grace overhear something out of context! And of course all these things do not just apply to us but to any family dealing with cancer with their children-- We are very lucky to have a great support group that has given us what we need to get through this day by day!

We made it! .. sign from Myers Park Traditional

Grier. Maggie, and I made it home!! We got to the airport around 7:30am-- went through security and made it to our gate by 8:00-- Our flight was not until 10:05 so we just waited! We did fly "stand-by" so a big thanks goes to Nancy ( USAir friend of my mom's) for sharing a few buddy passes!!
Grier and I picked up Hayes and Grace at ETES and life has been a bit normal since then!
We are planning on having a few low key days-- since we need to return on Tuesday!
Thanks for all the cards and small gifts you sent to him-- Grace Baptist & Covenant Kids made some neat cards for him! And a preschool class from Norfolk sent a picture of their class on a tractor!!! All of the cards and postcards were fun to read!! I had a fun time with the music cards!! Everyone is so kind to think of him!

RT Sim done-- Now the task of gettig home-

Our Radiation Simulation went fine today-- We got to the hospital at 10... and they said there had been some cancellations today so they were ahead of schedule!! Can you believe I just told you that!! WOW! The "team" examimed him and said he looked fine for anesthesia-- we headed down?? to the radiation simulation area and after a 40 minute wait he was done! He has some tattoos-- that will be with him forever-- and they made a mold of his chest & abdomen-- We finished about noon and he was starving so we headed to dunkin doughnuts!!!

We are trying to come home in the morning-- we are going to fly home on a "buddy pass" so pray that we get some seats on a plane! We will leave early in the morning and hopefully get on the first flight but there are others during the day that have seats open too- Corporate Angel does not have any flights right now-- hopefully we will be able to return with them - I guess you can now call us frequent flyers!!!

We have to be back in NY on Tuesday night or EARLY Wednesday morning to start radiation 2 times a day until the 8th-- Then we will be "off "for the weekend and start 3F8 on Monday the 11th! After the second round of that he will have another bone marrow test and then we can come home! It should be around the 15th of February! You can now see why I am so ready to get home for a fews days-

We are still in NYC!

We have been just hanging out in NY!! This is the part that drives me crazy--- I would rather be in Charlotte--especially when we have no appts.! It was not long ago-- I was trying to talk friends into coming to NYC for a girls weekend--- now I would be good if I never came back here!
Hayes, Grace and my mom came to NY on Saturday-- we did the same stuff we usually do-- walk to Times Square and then back to the Ronald--stopping now and then to window shop.. or get warm! It is very cold-- Sunday was a little of the same except the boys could not take the cold (10 degrees) so we would leave for quick trips and then come back!! All six of us camped at the Ronald-- remember that there are 2 twins.. and a sofa bed!! Sound fun? It was nice to see everyone but the 200 sq.ft gets smaller and smaller!!
Today.. we had a change-- Jeff took Hayes and Grace home and Grier, Maggie and me are left to hold down the new schedule-- Right now I know he has a Radiation appt. tomorrow @ 12:30pm-- I can not get them to tell me anything else-- I have tried several times-- I would love to get home if they are not going to start radiation for a few days-- We will see what tomorrow holds- I have already called Corporate Angels to see what flights are available-- Can you tell I am ready to get out of here?
Grier is doing good-- playing bugs..bugs.bugs.. with anyone who will play with him! He loves opening his mail that he has gotten-- everyone is so creative!! Thanks--
That is it for now-- will update tomorrow after his procedure!!!

The Go Grier Go team is starting to think about different fund raising ideas for 2008-- There is a car magnet idea right now-- Trish Riesmeyer is looking into this and has asked for help if you are willing to work on this project with her-- Her email is eriesmey@bellsouth.net--- her number is also 704-365-4200-- I would love to do a 5K/Fun Run someday to raise awareness for Neuroblastoma-- but will wait until things settle down!!

TGIF!

We are DONE with this round of 3F8! Grier did the best today-- (when I say "best"-- I am referring to the world of 3F8--- in a normal world-- it would not be good!) He had the normal amount of pain but recovered quicker than the other days-- We actually left MSKCC @ noon! He does not seem to have the headaches he has had-- so he is it up and playing a video game!

This is so different than yesterday-- he slept until 8pm and then woke up and wanted dinner!! He walked next door for a slice of pizza and came back to play in the room-- He was back to sleep by 10:30!

We still have not heard our schedule for the week-- Hopefully we will know something soon--

Today was a little different--

I have to say I started this day a little easier based on yesterday's response and last night-- Grier was so funny after dinner (Lenny's!!)-- he was wild-- jumping/diving from the Jeff's twin bed to his pull-out-- and having a great time watching...HAIRSPRAY!!! Funny huh? We joked with him and said no more black/white cookies-- they make you crazy!!! He finally fell asleep around 10-- and woke up once around 12:30am because his legs were hurting-- You could really tell because he was rolling all around and could not get comfy-- so I gave him a dose of pain med and he slept until 8am-- whew!

We left later than normal to see if they would work us in in Radiology-- they could not so we started 3F8 later than the other days-- but at least started before noon! I asked if the oncologist could come to us since we were going to be in the midst of treatment-- AND she did!!! She did our consult in the room while Grier was sleeping off his drugs-- The biggest thing we found out was there is not a chance in hell we will start radiation on Monday-- I was starting to wonder..because everyone you talked to had done simulation etc. to get ready--- and since we had not even had the consultation it was concerning me with the timing-- She said we MAY have the simulation done on Monday but it is up to anesthesia--- so we will see!! Looks like we come home next week for a few days -- I am not just going to hang out here and wait!

AHHH-- Now... I will tell you about 3F8 today... remember everyday is different! The shot started the day off bad-- I gave it in the Ronald and the 2 piece syringe that CMC gave me came apart as I was administering the leukine!! It sprayed in my face and the needle part was left in his leg-- NICE!!! He was fine and I think he got the bulk of the dose-- When we got to the treatment area I asked them about it and showed them the needle-- and they laughed and said they were cheap! And then gave me better needles-- They said it happens to them with that kind of needle too-
He started the procedure fine but he had breathing issues again-- not because he was not screaming but because he might have had hives in his throat that was making it hard for him to breathe-- I got our nurse when he had that"look" in his eyes and she came in and gave him a breathing treatment which helped a lot-- Then he was able to relax and sleep off the Dilaudud-- He has been getting terrible headaches from the Dilaudid and that has been that worst part until dinner time-- You can see it in his eyes that his head hurts-- and today he face has some swelling in it so he looks so tired!! That will be gone soon.. I hope! And he may be bouncing off the beds!!

We heard it snowed in the Queen City-- I had to share with our new friend from Michigan that school was closed-- She thought that was funny!! I hope everyone made a snowman before the rain washed the snow away!!

One more day to go--Can not wait-- We are scheduled for round 2 of 3F8 the week of 2/11!!! So it looks like Valentines Day will be spent in NY!

3 down-- 2 to go!

Today went as planned-- the good thing was we got him to scream when he was in pain instead of holding it in--- and his oxygen levels were good the entire time-- The funny thing about this treatment is that no day is the same-- and each day is very unpredictable!! We have been told to expect hives-- so that may happen during the next two doses-- who knows! He slept at the PDH for a couple of hours and then we put him in the stroller and came back to the RMDH-- When we got here and all 3 of us took a short nap! He is complaining of a headache-- and he had the same complaint last night-- it was nothing that Tylenol could not handle-- He still does not act like he remembers each morning-- truly amazing!!! He has perked up each afternoon a little earlier each day-- ready to play a "real" pinball machine!! And check the mailbox-- it is funny how he puts himself into a new routine here!

Tomorrow will be a bit different-- We are going to try to get "worked" in with the Radiation Oncologist early-- So, we will met with her @ 9:30-- HOPEFULLY!!! But you know how things work here-- Our appt. is at 11:00--- but that really messes up with our morning time slot of 3F8-- So, we would love to not get off that morning schedule -- it is working for us right now!
This is just the consultation for his radiation treatments-- Everyone says she is awesome so I am looking forward to hearing what she says--

Thanks for checking in and signing the blog (on gogriergo.com) or guestbook on CB!!!

Day 2 of 3F8

We got a decent nights sleep last night-- Grier had pain in his legs and he got 2 doses of Dilaudid -- After the second dose at 12:30am - he slept peacefully--

He got up this morning and surprisingly he was back to his old self-- He was ready to go to clinic-- after a shot :( -- And I was in total shock-- I could not believe there was no baulking at all to go back to the PDH-- We got there -- hit the juice machine-- he loves that!!! And made him a bagel-- Still amazing to me he went right into the room that we were in yesterday-- The nurse came in and hooked him up to the IV pump and we were on our way --
They started the antibody and he was fine until the flush-- it takes 30 minutes for 3F8 to go in and then it flushes for 20 minutes-- All of a sudden you see him stare-- then his heart rate starts to increase.... his face turns red and we hold oxygen on his face and massage his back, legs, or tummy with hot packs-- He has learned to blow- out to help with the pain-- This lasts for about 15 minutes-- but it is a long 15 minutes-- Today was a bit scary-- they gave him 2 rescue doses of Dillaudid-- They gave him a third and all of a sudden his heart rate was going down from 180-- and I thought the bulk of the pain was gone.. but then he fell asleep and I saw the O2 rate drop-- from 99-71...then 67-- I moved out of the way and the nurses took over-- They gave him a shake-- woke him up and made him cry to take a deep breath-- Scary! Actually more scary now that we are not in the midst of it--- the nurse was very calm-- and knew what to do-- I really think since she was calm that made us stay calm--- I asked her about it later and she said she was calm on the outside-- but she was nervous on the inside but knew what steps to do if the "shake" didn't make him take a deep breath! Needless to say-- EVERYDAY is different!
Grier is doing well-- he has an EXTREMELY high pain tolerance--- and as they say " he internalizes the pain!!!" He is not a huge screamer-- and it makes it hard to know exactly how much pain he is in--- The heart rate is my key-- it goes high -- 200 again today-- but came back down in the 130's quicker that yesterday!
Today I could not help but wish that people that vote on funding for pediatric cancer research would come to MSKCC and watch and listen to this treatment-- maybe more than 3% **of the total cancer research funds would go to find a cure for kids with cancer-- I am not saying we would not choose this therapy again---We certainly would since the options are slim to none--!!

**The National Cancer Institute's (NCI) federal
budget was $4.6 billion. Of that, breast cancer
received 12%, prostate cancer received 7%,
and all 12 major groups of pediatric cancers
combined received less than 3%

Thanks to Kristine-- The dinner you sent from Mezzaluna was great-- ! Also thanks to everyone who writes on the site-- either www. gogriergo.com or caringbridge-- it does help the time pass by reading them!! You would not believe how many people check their messages at the hospital all day while they are there on their caringbridge site or their website- Thank you for those of you that have made dinner for the "charlotte christenbury's"-- And thanks to Derann and Jeanna for helping to organize the help for us! It takes a village to keep up with the schedule we have been living since March--- Can you believe Grier and I have not spent more than 2 weeks a home at one time since March 27-- ? I am hoping soon-- we will be home for longer periods of time- OK--off to watch American Idol-- thanks for the reminder, Grace!!!

DAY 1 -- is over!

They told us the first day would be the hardest and they were right--- I guess-- I will tell you tomorrow!! We got to the hospital early-- and did our normal waiting-- Mondays are very busy- He had to have a finger stick-- so that started the morning off bad-- then I thought they were going to give the shot but soon found out I was going to give it so I had to go back to the Ronald and get it! We saw the NB team and then headed back to the day bed area to wait to start-- While waiting I could not help listen to the screams from the other children receiving 3f8-- this was making me anxious but not Grier-- he totally must tune all of that out- We were in a semi private room-- which may help--hmm... I do not know-- it helped to know the pain does stop-- but you feel for the child next to you--
Grier was finally ready to start and we were told during the first 30 minutes--- the intense pain would start 15 minutes into it--- he slept the first 15... and then started to get restless-- just like labor pains-- and his heart rate went to 170..180..200 and then he was given rescue drugs-- and after 15 minutes-- his heart rate went down a little.. he didn't look so flush... and he slept--
He has slept off and on the entire day--- we left the hospital around 5 and went to pick up a pain killer for tonight-- just in case- They said he did well--- I was shocked so I had to ask what not doing well was like and the description was awful-- so he did well!

I forgot that some people check caringbridge-- I have Grier's address on www.gogriergo.com --
But now have added it to the CB site-- Sorry for the confusion--

Until tomorrow--
Amy

Home sweet RONALD!

It is 10:20pm and we are in our room at the Ronald!! Our flight went well-- actually I should say great.. we did not lose anything this time at Security! Grier was so excited during our landing-- the NY Giants were shooting off fireworks from the stadium -- he alerted all the passengers around us about the fireworks!
Leaving was again -- bittersweet--- we are lucky to see if 3F8 is going to keep Grier feeling good-- but we were only home 7 days!!!
Tomorrow is the big day-- Grier will need prayers to keep the pain from 3F8 managable-- it will be a long day so I will update as soon as we are back at the RMDH!

ps-- Our room is #903-- He would love to get cards-- PLEASE do NOT send Large things!!! He likes to check the mail everyday-- so a postcard would be great if you want to send him something---

Our flight was cancelled yet again!-- I think I will wait to post that things are going as planned until we are in the air on Sunday!

On a side note-- Grier and I have been busy getting things done like car inspections-- and a trip to the DMV-- and while we were at the DMV-- the lady that was helping us said-- Oh-- how cute his hair has not come in yet-- my son was late to get hair too!!! I had to bite my tongue-- but then I decided ...she is going to know what a stupid comment she just made-- So, I said his hair has come and gone due to lots of CHEMO! Some people do not have a clue!

UPDATE-- With the help of my Aunt Linda-- we will be leaving for NY on Sunday @ 6:15pm on US AIRWAYS--- Jeff will stay the first week of 3F8 and then my mom will bring Hayes and Grace for the weekend and Jeff will take them home on Monday-- My mom will be with Grier and I at the Ronald during the week of radiation--

things are going as planned for a change!

We heard today that his bone marrow was clean-- and we are on a corporate angel flight on Sunday!! So, we are sticking to the plan I put in the previous post--

Also-- I wanted to say thanks to the ETES kids on bus #945-- we were stopped at the same light after school today and we heard them trying to get our attention--- and then we heard them chanting...."Go Grier Go"!!! Grier was smiling ear to ear as he was waving to you all on the bus!

Details....

I am going to attempt to write all the details that I know so far of the upcoming treatment--
We will go back to NY on the 13th-- so far there are no corporate angel flights-- we are going to wait a few more days until we decide to go USAir again---
Grier will start shots tomorrow--- YES!! I have to give shots again-- I really thought that was behind us for awhile-- These shots are part of the clinical trial.. 3F8 so he will receive them until Jan. 18th- On Monday, we have been told to plan on having a long day at the hospital (PDH)-- they will do blood work-- etc. and then we will begin 3f8--- This therapy will hopefully teach Grier's body to kill cancer cells-- The antibody is given by IV for 5 days-- it is very painful and we have been warned the first day is very hard to watch- He is given premeds... benedryl (sometimes you get hives... and morphine & dilaudid ( BIG pain med)--- then during the infusion he will also be given rescue drugs to help relieve the pain-- They promise he will not remember a thing!! He will most likely sleep a lot too-- This will last M-F -- so the 14th-18th! I was planning on coming home after that until they said he would do Radiation the following Monday-- This will take place 2x a day with Anesthesia each time because he has to lay perfectly still--- and remember he is 3!~ He will have Radiation for seven days-- M-F and then off for the weekend and then Monday and Tuesday- They say counts are not affected that much but the side effects are fatigue.. vomiting, diarrhea.. GREAT! This should end on the 29th-- I hope to come home but there is talk that we would have to stay because of a blood test they need to check to see if he can continue 3f8-- timing is critical for the tests-- and then we may be close to the 2nd round of 3f8--- So-- as you can see it will be a lot to deal with in the next few weeks-- If you want to know all the details of the 3F8 then go to MSKCC.org or www.bandofparents.org--
Grier is feeling really good at home-- he has enjoyed going to carpool-- seeing friends-- riding his big grey truck-- and sleeping in his own bed ( I have enjoyed that too!!) He does have a cold now and I hope he gets rid of it before we have to leave again!!
Our last few days have been very busy-- the hardest thing is to cram everything that needs to be done at our house in the few days we are actually in it!! It is hard to believe how much time was spent away from home in 2007-- and 2008 is starting out the same! I think this may be the last long stay in NY for awhile-- then we will be on a more regular schedule-- ( or at least as regular as it gets with MSKCC!!) That is it for now-- I will update when we know our plans-- we still have not heard about his bone marrow yet-- Hopefully it is still clean-- or all these plans will change!

Home by 9:45-- long day but worth it based on news!

Today was super long-- we got to clinic at 7-- no one really was there until 7:40-- so I am not sure what the rush is with their time! Grier's scan was around 8:15-- it is about an hour and a half-- them he wakes from anesthesia and we are on our way-- Since we were leaving we wanted to make sure we had the "green light"-- so we waited to talk to the team-- We finally caught up with Dr. Kushner and the scans were not ready to read on the computer yet-- so we waited an hour to talk to him again-- By 3:15 we were still waiting and starting to panic because we had to meet our car at the Ronald and check out!! 3:20-- we met with him again and found out this MIBG showed no active NB! Thank God! Now, we wait 5 days for the bone marrow to come back--
We will have to be back in NY on the 13th-- this will be a long stay-- possibly until February-- I keep going over my calendar trying to work it so it is not so long!! I will update later on the details of the next step of his treatment-- Everyone who deals with NB knows it is never ending-- you are always worried about relapse! But for now-- we will enjoy the next fews days at home and worry about the details on Monday!!

We had a relatively easy day-- Grier did great with his procedures-- He was able to help push the anesthesia so he was happy--- He informed us at lunch that the white medicine makes him dizzy!! Well-- he is right! We were back at the Ronald by 3--
Tomorrow we will brave the cold (-1) around 6:45am-- his tests will start around 8-- Then we should be done- We may meet with the team and find out some results-- The bone marrow will take around 5 days- Our car is picking us up at 4 so we can fly out at 6:50!! Thanks to Frances and the folks at Black Forest-- we are using the car service that they recommended! Can't wait to update and say we are home!!

Back in NYC-- trip #3

We flew into NYC today around noon--- We ended up taking a US airways flight due to no available corporate flights--- everything went fine except for a few confiscations at the security checkpoint!! Jeff lost his Kiehls (face lotion!!)-- and I lost a wine bottle opener-- Oops-- I forgot I had that in my purse!! Grier was a bit annoyed when they had him take his shoes off-- you know he has a shoe issue!! And then they made his poptart go into the x-ray machine-- But all ended fine and we had extra help from Nancy so it worked out and gave us some laughs!
We went straight to the day hospital-- he had a CBC done because he was borderline in Charlotte for a blood transfusion-- And he ended up not needing one--whew!! We got all of the necessary meds we will need for the next few days and then left after an exam-- He has gained weight-- and checked out well!!!
Our day will start early tomorrow-- he needs to drink some contrast-- then we will head over to the PDH by 9:30-- his scans are at 11:30-- (give or take a few hours :)!!) --while he is asleep for the CT-- they will do the bone marrow tests- He can not eat anything until after the scans-- that may be the hardest part--!!
We are freezing-- I wish I could record the howling wind sounds coming from the window!! Charlotte was very cold when we left-- but the wind here is MEAN-- especially walking everywhere!!