Anne, Grier and I made it home from the whirlwind NYC trip last night-We did all that we had to do at the hospital meanwhile trying to spend some time doing some "sightseeing"--- exhausted may be an understatement !!  As Anne said -the logistics of the trip went well--- we had a great room at the Ronald ( both beds worked... it was not tiny... and it was quiet).  We did not have to do too much waiting... and this work up did not include a MRI so it was one less sedation--  The best was that the Friday bone marrow test got moved to Thursday after his MIBG scan since he was already under anesthesia-- This was huge!!! And would not have happened without the help of a favorite nurse!!  The airport travel was the craziest--- the flight there had tons of turbulence and the taxi ride to the Ronald was awful-- The flight home went well-- except we got stopped by TSA trying to tell us that we had too may bags-- ( 3 people.. 3 bags!! she did not count Grier I guess!!)... security went OVERBOARD on our toiletries... and after we finally made it through and repack all our stuff-- we get to the gate and the agent tells us our bag is too big--- So we asked him to measure them and he was annoyed-- he did and then said well.. 1 one too big but he thinks they all weigh more than 40lbs!  We finally just told him to check all 3!! I was really mad as I watched people bring bags on the plane that were gigantic-- !!  The problem was the flight was over sold and they were asking for volunteers--- thought about it for a second-- but they were going to have to up the offer!!! $300 credit on USAirways was not going to do it! Enough of the logistics--- I know why you are reading this update-- I do know some results and that is the reason it has taken me so long to update-- Yesterday... as we cleaned the Ronald and packed I decided I was going to email and see if anyone could tell me something before we left the city--- It was not 2 minutes after I hit the original send button that I had a response... Grier's MIBG was negative (GOOD).... but his CT shows something....(possibly scar tissue) "slightly enlarged"--- This area has always been there and is NOT something new-- just slightly enlarged. As most of you know I think the MIBG scan is the BIG one --I always worry about that one because it lights up Neuroblastoma-- so negative is good-- nothing is lit up-- But I do know from experience of friends that sometimes a spot does not light up--  He emailed and said  that he wants Grier to have another CT in Charlotte in 4-5 weeks--  I am going to get in touch with our Charlotte docs and get this done sooner rather than later-- We do not know anything about bone marrows or urine so we still are waiting on those tests to come back.   We are in a holding pattern right now as we wait for more results and figure out how to find our what the something is!  Please do not share with children yet-- because this could possibly and hopefully be nothing and I do not want Hayes and Grace to worry for nothing- Grier is fine-- except for the pain from his bone marrows (4) and 4 vaccines he got-- This really slowed him down this time-- He usually does not complain but I could tell by his speed and the way he walked that he was hurting more than usual-   I will update as we know what we are going to do first-- Thanks for checking in- Amy