It's HAMA time!

Today is the day I dread.... not because we have to go to the clinic but because reality sets in and I have to take Grier to get his port accessed and have a vial of blood sent to NYC to see if he is eligible for another round of 3F8.  We did the clinic visit early this morning before school.  It went OK.... it is not fun when I have to tell Grier that I need to put numbing cream on his "button"-- he immediately goes into panic mode! We got to the clinic and I realized I forgot our "3F8 box" ( a little white box with instructions and the tube for the blood all labeled.... oops!!) So~ we drove back home and then back to the clinic :) It just gave the numbing cream more time to work :)  He did OK with the port access ( lots of screaming but no tears while he is prepped) I would be the same I am SURE!--- I had a few questions about accutane... those side effects drive me crazy!!! I thought his skin was looking great.... and as soon as we walked in Dr. M saw him in the waiting room and said... oh I can see he is taking accutane!!! I said really???? I thought he looked good and he grinned and said his lips gave him away---- I can't wait until this Sunday-- Grier needs a break from medicine!

We will hear about HAMA by Wednesday.  It really does not matter this time in regards to traveling to NYC--- we are going no matter what on Super Bowl Sunday.  Grier will have scans that week so I bought the tickets yesterday--- I wish I would have gotten them earlier.... I was waiting to see what Jeff could do with work so I waited to buy the tickets.  I had no idea that the weekend we are coming home is a holiday weekend-- uggh......... We are going to have to get off the "holiday" schedule--We have been on it a lot lately--  Most flights home were sold out and VERY expensive.... oh well... I do not have a choice so the tickets are done ~ Jeff, Grier, and I leave Sunday the 7th-- We will return on the 13th--- not as early as I wanted but I can always hope that corporate angels will fly from NYC- CLT again.... it sure did help ~

Grier has been doing great.... he takes his huge horse pills and all his other medicines without a problem. He likes going to TK and loves telling us about his day.  He wants to "learn" how to read so Maggie got him some tools to help with that-- This will be the first time all year he has gone to school two weeks in a row--- and we are not even leaving yet--- He has next week too!!!  My two weeks at home have been crazy.... last week was a blur.. very busy trying to catch up where I left off-- and this week a little of the same... I still have lots to do on my list... I had to take Hayes to the doctor after I took Grier today-- Grier kept asking me why I could not just take Hayes to "his" doctor-- I tried to explain to him they are different doctors-- !  We also had to take Tucker, our Golden to the Vet yesterday because he has another UTI ( and yes, I did have to get another urine collection from our dog--- if you are on Facebook you know I am getting good at that!) -- I think tonight after dinner I will just line everyone up and pass out their meds!!!! Grace and Jeff are the only ones that do not need to line up!! Doesn't our house sound fun!!

I will update before we leave--- I am hoping to hear that he is HAMA negative so we can continue on this study. I am also hoping to hear the phrase "clean scans" so we can continue on this path that we are on.  We have never had scans and 3F8 in the same week so it will be very busy--- we are also going to try to do the MIBG scan without anesthesia for the first time--- ( I do have anesthesia scheduled as back-up)-- but I am hoping it goes well and he is OK with staying still for an hour while the scanner scans his whole body.  I am sure he can do it...  I am just not sure I can NOT look at the screen while I am in the room with him---

ok that is it for now-- Grier is back from getting his cleats for T-ball--- He is VERY excited..... Now we just need it to warm up so baseball season can start!!