30 Days for a Cure is going really well--- who knew that 13 days would go by this quickly and be this exhausting at the same time--- it has been really worth it.... we have raised lots of money, raised a ton of awareness, and had fun at the same time-- Grier has actually missed the restaurant nights... I think he has gotten really used to dining out with friends! Saturday we saw lots of friends and family at Alphabet Soup--- Sunday at Blackhawk was fun and we added a mini-bake sale--- Grier wore the good cookie costume MacLean and Grace made and ate popcorn the entire time-- who can pass up a bag of Blackhawk popcorn... A lady that worked at Blackhawk came to get some cupcakes, and asked if Grier was with us-- and I said he was but he went home.... I assured her she must have seen him go into the store a few times to get popcorn and she said, "Was he the little boy with the crewcut?"  I smiled and said, YES!!!   Today we were at Black Forest Books and Toys.... and tomorrow will be Ben & Jerry's at 3 locations ( Woodlawn, Fairview, and Providence Rd- Myers Park) Hopefully we will have a halfway total by Day 15-

I am glad I have been busy with 30 days because it has been a great distraction for me while I have waited for the two docs to update each other.  I found out today that NYC wants Grier to do another round of the last chemo he just completed.... I was stunned at first.... because I just knew it was time for his scans... so after MANY, MANY emails back and forth-- I think I understand what the plan will be-- There is a possibility ( a very rare one) in my opinion that he will start chemo tomorrow-- and we will wait a week and then leave for NYC for scans-- OR he will start on Monday the 20th and then we will wait a week and go to NYC for scans... he will have an MRI here in Charlotte and an echo cardiogram -  The main reason for the chemo is to not leave him unprotected while we wait for the next therapy-- it will possibly be the vaccine.  The vaccine is a series of painful shots that he will receive in NYC -- This is a PHASE 1 clinical trial.... I will post more information later... when I know for sure that is the way we are going to go--- ugh-- I just wish there was a clear cut answer to all this.... but there is NOT-- And I wish there was a way to protect him besides Chemo--  This is why I want more research....!!!!

I will update tomorrow-- especially if he starts chemo--- nothing like being flexible~