A week in pictures...

Since I am too tired --- I am afraid I would not make much sense as I tried to write an update.... so the next best thing is pictures..... so I am posting our week in pictures..... I can not believe I did not take any pictures while we were in the Museum... well... yes, I can... we were looking for Liam and Ella and the exhibits we were trying to see were closed so it was a crazy visit :) There is a whole day of pictures missing.... but you will get the point..... also they were in order but now they are all mixed up--- just read the captions~  We landed in Charlotte at 12:30 on Friday--- it felt like we had a full day by the time we got off the plane.... packing, cleaning, and hailing a cab to LGA!!! There was no time for a "gentle re-entry" -- I hit the ground running back into my routine.... and so did Grier--- We all went to the MP football game and by the time we got home our beds were calling our names!!! Saturday morning I got up early and went to Greenville, SC with Lesa to "experience" a HUGE bake sale--- and to sell some T's and bottle cap necklaces.  We had a great time and even though I was too tired I am so glad I went.  I was able to see some friends we usually see in NYC-- and I met some other families that are fighting the same battle as we are and two very brave families that fought the same battle and lost their children.

I have not heard from NYC since we left the clinic on Thursday.... I hope to hear something sometime this week.  Grier did an extra blood test to see if his immune system is ready to do it's job--- if he is NED then he will most likely be on the vaccine trial.  We need his immune system to be healthy enough so we are waiting on a test to let us know.  

That is it--- I will update as soon as I can.... all in all NYC was uneventful.... Grier did an amazing job handling these tests and I just tried to "breathe" for the few days we were in the city.... I am still trying to do that... and I think I have learned that will always be the case... so I better get used to it--- 

PLEASE save the date for Saturday, December 4th--- Charlotte's BAKE SALE will be BACK--- and this year we have set the goal HIGHER than ever---- more to come soon.... 

Over $11,000 was raised in Greenville, SC for pediatric kids cancer--- 

Laura Black and a cute little "cupcake"
Laura was the organizer of this fantastic bake sale--- Laura was inspired to do"something" after reading a blog post on GGG---  

more bake sale photos

Greenville, SC Cookies for Kids Cancer Bake Sale-- saturday

Bye-Bye NYC-- see ya real soon!

Grier's new favorite game in the playroom at the Ronald--- 

A trip to Dylan's Candy bar---- we always try to hit this spot--- our tradition!

A picture in front of the Apple store.... 

A trip to FAO to get "something" for being so good during all the scans aka "pictures"

hanging out in the IV room with his buddy, Liam-- 

Part 2 of the MIBG-- spec scan... laying still after bone marrows--

Still a little groggy after anesthesia--- "blowing" powder sugar at Dunkin Doughnuts

staying "still as a statue" for 45 minutes

"snug as a bug" in the scanner!

waiting for the MIBG @ 8:00am

A little BINGO + an eye roll at my camera--- he did not win this time~

Waiting for our plane at the hanger-- doing  little homework with Dad before we have to say good-bye and head to NJ

Being treated like a "king" corporate angels is a great organization... Thanks to the companies that donate empty seats on their flights

A quick nap before we land in Teterboro, NJ

Grier's first request after we landed and made a trip to the hospital for our bag of supplies for the week-