What a day!

So many things are winding down because summer vacation is almost here but there are so many things that need to get done right away (forms to fill out, projects, etc.)--- Today was a crazy day for Grier and I--- As I think about it now that he is asleep-- I can not believe he did so well with all that we did today--

Today was the last day of preschool--- I truly think he will miss going. He looked forward to going and talked about what he did that day for days after!
After school, we went to clinic for a HAMA blood test--- not a favorite activity for either of us-- he got through it with only a few tears-- Sharon, Dawn and Jennifer were trying really hard to distract him-- but he is smart enough now to remember what will happen after the "magic" cream aka lidacane goes on his port-- We went to lunch... lost the parking deck ticket--- jumped through CMC red tape to get a free pass to get out of the deck....went to Kinko's to mail the blood to NYC ( a new guy helped me so we will say a prayer it gets there in time!)...went to Centura to get forms notarized ( and met some really nice people that recognized my go grier go bracelet... see there is "power in a bracelet!"--- and then asked if that was "Grier"!! He entertained them for a little bit-)... dropped off a generic form of Accutane to exchange for the brand name version at Walgreens.... picked up Hayes and Grace... went to swim team ...... dinner.... gas.... and back to Walgreens...then sat in the parking lot on the phone with insurance arguing the cost of the accutane ($8 vs. $354.00)-- apparently the BRAND name is REALLY expensive and I have only been charged for generic in NY but always given the BRAND name! Any other time I would not care about generic but size matters this time--- Grier is 3-- he swallows 3 pills a day the size of a jelly belly-- the generic version is larger-- the size of a Mike and Ike or a Hot Tamale! So I am trying to reason with them and they really do not care-- So-- I end up eating the difference and telling the woman I will appeal it! I have gotten good at doing that-- :) Again it was one of those times-- I thought.. Did she just hear me say my 3 year takes this for a cancer treatment--???
AM I making you tired yet?????
I am sure a lot of you had this same day (maybe with or w/o the medical drama!)-- I did think a few times that May is like December--- it is hard to slow down and enjoy the end of school when there is so much that has to be done--- And since cloning is not an option --- I guess we all continue to do it !

We should hear from MSKCC by Tuesday night--- I will call them on Wednesday morning just to be sure --- I am assuming if he is HAMA negative-- we will head to NYC on June 8th ( yes-- his 4th birthday) and be there for a week of 3F8-- Of course -- All of this is based on his HAMA test result--

That is it for now-- Thanks to all that bought a GGG T-shirt--- And to Kerri for organizing all of it--- A teacher had one on at school today and some of the kids said... "I have that sticker on my car!" I also forgot to thank Leslie Ford for printing tattoos--- that say Go Grier Go-- I have seen lots of kids with them on! Awareness is the only thing going to change the outcome of Neuroblastoma--- !

FYI--- if you have not heard yet about this news that will also bring more awareness -

September 13, 2008 will now be recognized as 'National Childhood Cancer Awareness Day' as a result of a Senate resolution introduced by U.S. Senators Wayne Allard (R-Colo.) and Hillary Rodham Clinton (D-NY).