We have ended yet another CRAZY week--- I know... 3 kids makes most weeks hectic!
Grier and I will fly out Sunday night-- thanks to Corporate Angels again! We should get to the Ronald by 9pm-- Jeff and the kids will stay here so they can finish up school, go to their awards day, swim and just begin summer vacation! We do not have a flight scheduled to come back to Charlotte -- but I am hoping to come back Saturday or Sunday-- Grier always gets excited about going to " NEW YORK CITY"-- he has made his pile of what he is going to take-- "grey" cat is on top! Occasionally, he will asks-- "why" are we going to NY again? And I tell him we have to get some medicine to keep you healthy-- and he says ... what kind? And I tell him the kind you get when you hold the "blue tube" (oxygen tube!) every day at the hospital! And he says--"OK"- Our first roommate called 3F8 the "hurt medicine"--She is a little older-- and looked forward to each morning... getting the "hurt medicine"--That is how routine this therapy is to the kids- and the fact that Dilaudid must be a great drug! I am sure as he gets older he will not be happy with my simple explanation of what kind of medicine--
Monday might be the longest day ever-- we are doing something a little different-- we are going to be on the afternoon schedule for 3F8--- it just means we will have to be at the hospital @ 12:15-- instead of 8:30--- Mondays are always long due to waiting for tests and recovery time and we usually leave around 4-5 so who knows what time we will finish when we start well after 1pm!
I think a lot of people loved the lemonade stand idea--- I think I like it the best because it empowers kids to help--- and the funds actually go to a children's cause--- A lot of times kids are raising money for adult causes---! The website is great-- you should take a look at it if you have time- There will be a stand on our street-- sometime this summer---! Grace loves to sell lemonade!
That is it for now-- We have a busy and HOT day planned at the ball field-- and I have to pack a little too--! I am hoping that NYC is not as HOT but I have been told not to count on it--- those buildings and all that concrete hold the heat !!!!
**ALSO** Lots of GGG T's are being spotted around town--- and I am enjoying hearing where and who was wearing them!! A huge THANKS to Arboretum Pediatrics--- I hear they all wear theirs on Friday at the office!!! There are a FEW extras in most sizes--- if you want one email Kerri-- rnorwood@comporium.net -- They will not be reordered so act fast if you want one--
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Saturday, June 7, 2008
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
4 comments:
I am having trouble with my computer again. I am glad you got a flight out. Also happy to hear Grier does not connect N.Y. to all bad thoughts.
I will definitely be at Grace's lemonade stand when she sets up.
I am sure they are anxious to be done with school.
I will pray for a safe trip and also for you to be home to start summer vacation quickly.
Know you are with us always in thoughts and prayers,
Mary Ellen
Thinking about you all as you and Grier get ready to leave town. So glad that Grier is looking forward to the trip...certainly better than the opposite.
Hoping that all goes well with your travel and getting settled in your room this evening. Will be thinking about you all day with warm thoughts.
Glad trusty grey cat is looking forward to the newest adventure!
Lots of love to you all...
Dina
Hope this finds you and Grier settled in and comfy at the Ronald tonight. Good decision to leave Jeff home to deal with the last 2 crazy days of school -- we should have been out Friday!!!
Glad you were able to get a Corporate Angel flight today and will have an uneventful schedule this week -- that is, that everything will go according to your plan. We'll keep hoping that Grier continues to be so nonchalant and accepting of 3f8. Sure makes it easier that way. What a trooper!
Love and prayers to you both tonight. Will check your updates each day while you're there. Try to stay cool!
Betty G
I think today (the 8th) is Grier's bday? Hope everyone in the family is doing well and that the trip to NYC goes well. Prayers for your trip and his treatments.
Stacy Sparks
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