Praise and Prayers!

I had to post this cute picture of the lemonade stand that these kids did all by themselves-- They did a great job-- Thanks Everybody!!


Grier finished a whole week of VBS-- he had a great time-- He brought home lots of stories about what happened during the day and I enjoyed every minute of it-- I even had more information ( a little too much at times!)-since Grace was with him all week-- While they were gone, Hayes and I were busy purging the attic-- At one point it looked like we were moving!! But it feels so good to "clean house " of so much clutter that had been ignored for 1 year!

I loved reading every one's excitement over Grier's latest test results-- It is a milestone-- I was looking at pictures on my computer and Grier said, "Hey .. who is that?"-- I told him that is you! Well-- he did not recognize himself without hair!! He quickly changed the subject and asked some other question!!

As we try to enjoy the next 90 days off treatment -- I still have a sick feeling when he says "my head hurts" or "my tummy hurts"-- knowing more often than not it is a normal childhood ache but remembering he is still a NB survivor and we are going to be living in 90 days intervals for a long time-


I do not normally post about kids we know-- but I had so many emails about this little boy last Fall when we were going to MSKCC for the first time-& I also received so many copies of the article in Parent's Magazine that showed a day in the life of Liam going through the all too familiar procedures at Sloan-- so I thought you would like to know.........
I would like to ask you all to say a prayer for a family that we have met-- and I am sure some of you remember him on TV ( GMA & CNN etc.) --his mom did the Cookies for a Cause campaign last December-- 96,000 cookies and $400,000 for research at MSKCC in two weeks ( and Liam was still in active treatment at the time!) and Parent's Magazine-- Liam Witt is a 4 year old whose story is just like Grier's-- he was diagnosed a few months earlier-- and basically was a text book case for NB-- He went through all treatments at MSKCC-- had surgery, radiation, and the optimal rounds of 3F8 before he HAMA'd - showed NED multiple times and he was there doing his 3 month scans last week with us and the CT scan saw a shadow above his kidney- After several extra tests-- the MIBG, PET scan, bone marrow, and urine were all clean, but there was still a small shadow that no one could explain-- so the NB team decided not to take any chances and go in surgically and look to see if it was scar tissue from his previous surgery-- And unfortunately it was not-- he had a dime sized tumor in the original location and it was NB-- It was removed yesterday and he is recovering-- He will begin a new treatment plan next week-- This is a strong family that is not only fighting for Liam but for all NB kids through their work with the Band of Parents-- And once again we are reminded that life can change in a minute without any warning-