Have you ever gotten somewhere and wondered how did it happen? I am not even talking about the last 2 years.... I am really talking about getting to NYC today!!! Somehow all the packing, list making, grocery shopping, organizing got done and all of a sudden we are back in a familiar place-- the Ronald!!! Ugggh! It was 4 weeks ago we left the Ronald knowing about the "something" and here we are again-- We flew JetBlue and had a nice flight--- it would have be a lot nicer if I can figure out how to fly w/o ear pain!!! But with the TV's and not having to schlep our carry- on around ...we had a NICE flight into JFK-- took a cab to the RMDH... and arrived around 8:15? There was a little confusion at the check in desk -- they thought we were coming tomorrow-- which we were until we could not get a flight so we came a day early... they tried to say they did not know but after I told them what day the email were sent they found it--- imagine that! We have a nice room similar to the first time we stayed here-- so that is a plus! We have done some rearranging and pushed the two twins together so they sleep 3!! The biggest question of the day is when are we checking out or when are we going home... ( that is from Grier) and I have to say I do not know! Not an answer I like --- but it is the truth- I heard Grier tucking in his animals telling them they were on a trip and we were going home... (pause) Grier: MOM... when are we going home, like how many days are WE staying here ? Mom: I do not know .... we will see what the doctors say... Grier: ( silence) The most excitement of the day was figuring out how to use Skype-- As you can see from the picture-- we can video chat with Hayes, Grace and Maggie-- Tomorrow the PDH is closed so we do not have to go anywhere near that place-- I told Grier we may go sail the remote control boats at Central Park--- he said OK-- we will see what else we decide to do--- but I am going to try to stay far away from Times Square! That is it for tonight-- I am tired and Grier has settled down after a quick crash game with his cars and watching a race on TV-- what could be better??? hmmmm... you do not want me to answer that!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Sunday, September 6, 2009
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
2 comments:
Happy to hear you are settled in. I hope you got a little rest. What a stupid thing to say of course you didn't. We are thinking of you and praying for a quick good answer.
Hope you are back in Charlotte soon. Looking forward to seeing Grier at school. Wondering if he will want to dress like a coach this year. Take care of each other.
Loys of Love,
Mary Ellen
Love the Skype, that's great. Will be thinking of you all tomorrow and all week!!!
Netha
Post a Comment