Things are changing a little!!! Grier perked up a little on Saturday night at Grace's family dinner--- he ate a "little" bit and drank a creme soda--- his favorite!! On Sunday, he had even more energy and did not nap--- He spilled the beans about the present he got Grace... but as Grace says... he gave it to me so he could play it--- maybe so but there was a wii marathon in my house on Sunday--- Grier gave Grace wii resort for her birthday and they have loved playing it!! Sunday was a great day for the festival too--- but Grier did not make it to the park-- just asked for a balloon each time we went over there--- :) We are still managing some side effects-- I will spare the details. We are now playing musical beds--- Grier and Hayes share a room and when he is sick we just put him in our room--- he used to sleep in the toddler bed but he is a little big for that now and as he says it is not so comfy!! Plus the crying wakes Hayes so we are trying to balance out who needs the most sleep--- and at the moment the "tween" is the winner! It is almost a no win situation because as soon as we get him back to his room we will be fighting the same side effects again--- So... Jeff and Hayes are roomies at the moment-- Grier had a clinic appointment today-- and after the initial tantrum about not wanting to go to the doctor anymore and screaming about going to the doctor for 20 days straight we made it-- he actually fell asleep from here to CMC--- and most know it is less than 3 miles!!! We decided to do a finger prick instead of accessing the port to check his counts and that went OK---I told him afterwards that his scream could have broken the glass it was so high -- and he smiled-- We left after a quick check up -- they called to tell us his counts and he is nutrapenic ( no immune system) but his blood and platelets are holding steady and he did not need a transfusion yet--- we have to go back to the clinic on Wednesday Morning to check again because it will happen soon- We also start the dreaded G-shots on Wednesday too--- can't wait to tell him that one!!! uggh---I hope I have not lost my touch--- hmmm not sure who I am kidding I was not very good at giving shots. Still praying for no fever-- he is doing better but he has lost 3 lbs--- does not seem like a lot but when you are only 40lbs -- it is !
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3 comments:
Coach John and the birthday girl...what a cute pair. Sounds like Grace is the lucky one with the sleep situation. I bet Jeff is missing his green chair. Tell the double digit queen I said Happy Birthday!
Love to you all,
Kerri
Thinking of you constantly. I have the Go Grier Go! bracelet back on my arm. So glad to hear that Grier is feeling better. Happy Birthday to Grace. Hope she liked her pretty gift from you. Nancy Williams
Praying constantly for your little Grier. We are sending lots of hope and love from Greenville, SC.
Laura Robinson Black
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