What a wild and crazy week--- Certainly not what I had hoped the 2nd week of school to be like! I am not going into a lot of details right now... but we are headed to NYC- Not the weekend plans I had hoped for on this Holiday weekend.... ( I was really hoping to go somewhere with Jeff for the weekend sans kids) to celebrate our anniversary which is today--- Oh well-- Here we come again NYC, MSKCC, and the Ronald! In some ways this week has been long --trying to get answers to questions but when the information started coming in it was very fast-- not fast enough to book a later flight, so we will leave on Sunday afternoon-- We did have a flight on corporate angels but they got the departure city wrong and called to say they had made a mistake--- really.... not the best luck! Grier did make it to school so he could meet his teachers-- and his soccer team roster and schedule showed up in my inbox--- ALL to start on the 8th --- but it will all have to wait! We have a surgery consult on the 8th and the OR has been booked for the 9th! My calendar has been cleared... Jeff is coming with us and we will finally get to see what this "something" is-- I know I just made that sound easier than it will be but I am hopeful that he will do better or the same as he did almost 2 years ago! I will do updates from NYC -- and I am hoping we are back in CLT quickly-- Sorry to be so vague but until we have the consult I am going to not guess on any details- ps-
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Friday, September 4, 2009
We are on the rollercoaster again!
What a wild and crazy week--- Certainly not what I had hoped the 2nd week of school to be like! I am not going into a lot of details right now... but we are headed to NYC- Not the weekend plans I had hoped for on this Holiday weekend.... ( I was really hoping to go somewhere with Jeff for the weekend sans kids) to celebrate our anniversary which is today--- Oh well-- Here we come again NYC, MSKCC, and the Ronald! In some ways this week has been long --trying to get answers to questions but when the information started coming in it was very fast-- not fast enough to book a later flight, so we will leave on Sunday afternoon-- We did have a flight on corporate angels but they got the departure city wrong and called to say they had made a mistake--- really.... not the best luck! Grier did make it to school so he could meet his teachers-- and his soccer team roster and schedule showed up in my inbox--- ALL to start on the 8th --- but it will all have to wait! We have a surgery consult on the 8th and the OR has been booked for the 9th! My calendar has been cleared... Jeff is coming with us and we will finally get to see what this "something" is-- I know I just made that sound easier than it will be but I am hopeful that he will do better or the same as he did almost 2 years ago! I will do updates from NYC -- and I am hoping we are back in CLT quickly-- Sorry to be so vague but until we have the consult I am going to not guess on any details- ps-
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
4 comments:
Happy Anniversary. Sorry it is not what you planned but we pray that you will be able to get away when you come home.
Remember I am available and ready whenever you need me. Hope Grier maybe will bring luck to the Panthers-they need it. Glad he had fun.
Take care and know you are in our prayers and so very close to our hearts.
Lots of love and hope,
The Paine's
You know that you, Jeff, and Grier will be in my thoughts and prayers in NYC and G&H&Maggie here. Scary for you all but sounds like a plan is in place and I trust those wonderful doctors at MSK.
Will check your blog for updates next week. God speed!
Happy Anniversary. You are getting at least part of your wish -- the out of town part with wonderful accomodations at the Ronald! HaHa!
Love to you all,
Betty G
We will be thinking and praying for you all. Happy Anniversary!
The pics of Grier at the Panthers game are wonderful! Sending out hugs and prayers
Netha and all
So glad you and Jeff are able to go together to try and find out some answers. Sending you prayers and positive thoughts from Charlotte. We are praying for all of you.
The Norvells
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