Grier is still a resident at the resort we call LCH--- he has not had a fever since Thursday night when he was admitted--- His counts have gone up from .1 to .2 to .3 and today they were .7!!! His blood cultures have all come back negative --- BUT we are still HERE!  He did have to have another platelet transfusion this morning --- Every few minutes he says.. "I just really want to go HOME"--- mom can you tell them we are going home--- I wish it was that easy--:)

Being here this past weekend help the craziness of juggling Hayes and Grace--- Jeff was able to spend Friday and Saturday night at the hospital and I was able to be with H &G-- Also we had my mom helping and lots of  visitors so the weekend seemed to go by quickly!

We have officially started the "work-up" after the 2 rounds of chemo--- Grier did a urine test last week-- I now have the least amount of confidence in that test.... he also had an echocariogram on Friday---   This Thursday will be a BIG test-- He will have an MRI of the head and spine-- it will be under anesthesia and will last about 4 hours plus he will have to go to recovery-- It will be another long day at the hospital-- And we are waiting for final word from NYC -- we need to have the MIBG and CT done there next week as well as bone marrow tests-- The whle thought of going to NYC right now makes me crazy-- I feel like we have not really been home and now we are getting ready for the hardest part of this next part of the treatment---   

Here is a brief update on the Milestones walk--- our team is very strong and large--- :)  I think the last number I saw was over 100-- I want to challenge everyone that has signed up to walk as a walker or in spirit to send 10 emails to your friends--- ask then to pledge $5 or $10-- With a team our size even the smallest donation will make a difference if everyone asks 10 friends!  The t-shirt order has been placed-- Thanks for all the timely orders... If you want to help distribute them email gogriergo@att.net--- Most likely I will be gone so I will need lots of help getting the shirts to people-  

That is it for now-- Hopefully the good news will start coming in from the work-up and we will be back from NYC before we are even missed!! Ha!Ha!