Uggh- I am not sure where the stamina I had 2 years ago is now!!! I am tired ... I know Grier is over this and the rest of my house--- Going to doctors appointments has become the plan of the day-- and Grier and I are done with it all! I have barely had a conversation with Jeff in weeks--- seems texting is the new way to talk-- he is going one way and I am trying to manage what I used to do plus adding the medical director title-- We went to the clinic yesterday and counts were holding their own-- Grier even announced that he did not need blood when we got home-- clearly... not a normal response to how was your day!! He played wii--- and then the BIG "D" hit again last night--- he woke up this morning and felt warm so we were on fever watch all day--- around 3pm he spike to the magic point the call had to be made to the clinic--- And they said to come on over so he could be admitted--
This is where is gets a little comical--- The clinic parking is not close to LCH--- go figure since I can place a bet they have the most admissions on a daily basis-- but that does not matter-- I chose to park where I know we will end up and that is LCH--- so it is a longer walk at first but when I am trying to go home quickly it is shorter--- I have Grier... in his "man cave" aka the stroller... and our bag--- we do what we always do walk into CMC to go over the crosswalk to get to the clinic---- oops--- not today.... we were accosted by the under 18 police and told by her we could not go into the hospital--- I tried to explain and tell them he had a fever-- we are on our way to the oncology clinic but NO was the answer! I really do not have the energy to fight assclowns so I just thought we would walk through LCH-- And they told me we could not walk to the clinic because he is under 18--- NOW....again... I said he has a fever trying to get to the clinic to be admitted--- and she said you are going to have to walk up the hill outside---- because he is not a patient yet... uhhh... I said maybe not at the minute but we are frequent flyers-- and she pointed to the outside--- I swear.. people are going nuts about the flu-- forget about the kids who have cancer!
We made it to clinic--- and I do not care about the hike up the hill while I am carrying all kinds of stuff-- because I have done worse in NYC--- The under 18 rule is not that bad but it is hard on families-- Grace and Hayes can not come up and Jeff and I will have to switch in the lobby or just not bring them at all---
I am going to sleep before they come in for the 100th time tonight-- It is the most bizarre thing... rest is not something you get here!
T
We made it to clinic--- and I do not care about the hike up the hill while I am carrying all kinds of stuff-- because I have done worse in NYC--- The under 18 rule is not that bad but it is hard on families-- Grace and Hayes can not come up and Jeff and I will have to switch in the lobby or just not bring them at all---
I am going to sleep before they come in for the 100th time tonight-- It is the most bizarre thing... rest is not something you get here!
3 comments:
Now this really sucks! Praying that this will be a short stay, and that you will have good nurses.
Kerri
You have got to be kidding me! These people should be bending over backwards to make your life easier and here they are adding to your stress. You would think there would be people at the hospital thinking these things through. You are amazing and handle it much better than I would. I would have lost it on the person and would not have been as nice as I am sure you were.
We love you - hang in there.
Daphne
Gosh, been reading for awhile now and decided time to "out" myself. I give you so much credit! God Bless You!! Praying for Grier daily. Sending some visitors over via my Facebook! Keep the faith...
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