The start of another countdown!

Day 1 of 3F8 is DONE--- and as you can see from the pictures it was interesting to say the least... you just never know how a day will be and this treatment was very similar to a treatment well over a year ago.... and because I have seen it before the panic did not happen!!

Grier had lots of hives right away... and these hives are also internal so it made him cough.. and have a breathing reaction--- we always have a blow-by of oxygen as he gets the treatment and I watch the monitor to see his stats... he was in the 99-100 range and all of a sudden he dropped into the low 90's... then high 80's so I called our great nurses and they started a nebulizer treatment but it was not working.... we needed him to cry or scream so they did their magic and got him sitting up and checking all vitals--- his blood pressure dropped into the 60's/30's --- he started to cry a little... then they changed the mask --- gave him a bolus of fluids and his stats started to come back.. it took awhile to get his heart rate back to normal... but by 3:45pm he was well enough to go back to the Ronald--- he ended up sleeping until 7:15~  He has eaten some dinner... and been playing again like this morning did not take place!!! 

We did get to see a friend from Charlotte today... his is here getting scans done.... Grier liked showing him the itouch this morning.... He was on the look out for another friend, Marett -- she is here for scans too--- we are hoping they receive great news !!!