Ugghhhh.... Another weekend with no Internet at the RONALD~ I would have updated sooner but it is impossible for me to do this on  my phone.

It has been very cold here so that limits the walking we have been able to do :) So, Grier has had PLENTY of time at the ping-pong table in the playroom as well as the Ms. Pac-Man video game.... yes, I said Ms. Pac-Man!!! I even remember loving that game.

On Friday, we had another fun visitor.... Jeanna was here and stopped in and we went to Lenny's before she flew home.... she also played a game of ping-pong with Grier!!!  It was fun to see a familiar face from home.  

We have been on a few more trips via the NYPD bus.... we went to the premier of Princess and the Frog and to Christmas Spectacular with the Rockettes at Radio City Music Hall.  Both were fun trips and the ride to and from might have been just as exciting!  Nothing like weaving in and out of NY traffic in a huge school bus with lights and sirens.

I read a few of the last posts and it almost sounds like we are on a NYC sightseeing vacation... but I can assure you this is a time filler.... and in between we are going to the hospital, getting poked and prodded, giving medicine 3-5 times a day, giving a shot..... and tomorrow is the start of the dreaded antibody (3F8) week!!!  We will have to be at the hospital by 8 and Grier will need his port accessed and a finger stick-- those two things right there are enough to ruin a day.  After that we will meet with the TEAM (Neuroblastoma)-- get cleared for treatment and then wait for labwork-- as soon as that comes I will give him the shot and we will wait an hour before we can start all the pre-meds for treatment.  I am planning for a whole day at the hospital... Grier will be in a narcotic haze for most of the day.  We will repeat this 5 times this week but on Friday he has to have Bone Marrows done before the 3F8--- I am glad he has gotten to see another side of NY because this week will make him say He DOES NOT like NY again! The plan is to fly home on Saturday morning--- I can not believe we have been here for almost 3 weeks!!!!

I have saved the best update for last.... CHARLOTTE, NC just had the biggest Cookies for Kids Cancer Bake sale in history!!! We beat NYC and San Fran!!! I want to thank everyone involved especially, Lesa, Patty and Mary for running with this idea.  I do not know a final total yet but it is BIG--- and going to be doubled by Glad!  As Grier goes through this treatment this week we are very thankful for the opportunity to participate in this clinical trial.... Hopefully one day enough research will be done so better, far less painful treatments will be developed to cure pediatric cancer or at the very least to be able to treat it as a chronic condition without the loss of quality of life.  Thanks again to all you GOOD cookies out there!!!! 

ok-- off to bed... I hope I can sleep as I anticipate the next five days of HELL--