Grier did an amazing job staying still for his first MRI without anesthesia..... I thought it was going to be a little "iffy" at first because we had some unexpected procedures..... ON Friday we went over to the clinic to have Grier accessed by our nurse -- she is very good at it and this is something Grier hates.... so I did not know who would do it on Saturday in an adult area... Grier was pretty funny as we drove over there... he said... MOM- I just had my port taken out yesterday and why do I need to get another in today.... We should have just left it in!--- Yes...so true if we had only known he needed an MRI :) Anyway... all went well at the clinic and Dr. M even gave him 1 ativan to try to make him sleep and relax.... just in case we needed it....
When we arrived on Saturday-- NO one was there... that is the ticket... get things done on a Saturday before July 4th~ anyway after I filled out all the papers... they checked us for metal on our clothing... and then I told the RN he was already accessed-- She said... Y'all are really prepared!!! Yes... We try to be so there are no surprises.... She left and the MRI tech came in to share some bad news--- his port/needle would have to come out because the powerful magnet in the MRI might burn his skin --- That was a little hard to argue about -- so the RN came in and said she could do an IV so they could put the contrast in his arm... LOTS of TEARS and that point---- and he said MOM~ you did not tell me that part..... ! The Tech was great got him side tracked and he calmed down a little-- I asked if she thought I should try the ativan and she said yes.. it will make him sleepy.... so he took it and then we walked in to tour the MRI machine.... Grier is not a fan of loud noises and MRI's sound like a jack hammer so I was getting more nervous as we stayed in the room.... He seemed ok--- He got up on the table and then she show him the Helmet his head had to be in--- more like a cage--- it had a mirror that he could look up into and see me-- He did fine... with all that-- I was standing by his head.... not talking because we all had earplugs in and he could not hear me if he tried.... As I was standing there waiting for her to finish getting him ready I felt a tug on my shirt... I thought it was the RN... but nobody was there.... it happened again and them I realized that magnet was pulling my bra~ NICE---- so I asked told the tech... of yeah I do have some metal and she laughed and said it would be ok-- She started the first set of scans and all I could see was Grier two eyes looking at me through the mirror.... he looked fine one second and even gave me a wink but then I could tell tears were coming .... he calmed down and we proceeded--- 45 minutes later and an IV contrast injection he was done and ready to go--- NEVER falling asleep-- HA! He must have a high tolerance for sedatives....
He was so ready -- he almost jumped off the table.... and we left---
Last night we enjoyed some fireworks with friends... and will do the same tonight.... Probably even more so now that I just got a call from Dr. M that said Grier's MRI is perfect.... He said that we should come to the clinic on Tuesday to start the process of being admitted to the hospital for 4 days of high dose chemo...
Happy 4th to everyone.... I will update more next week as he fights through another week of chemo-
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Sunday, July 4, 2010
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
2 comments:
WHAT A GUY...WHAT A FAMILY!! LOVE, NANCY WILLIAMS
Amy,
This is so great! I hope the last round of chemo goes amazingly well! I'm glad topsail was so relaxing!
Loving and praying for you all!
Julie
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