Wednesday was a pretty low-key do nothing day..... Grier didn't have a lot of energy and was NOT eating or drinking much at all... I was just hoping we were going to make our clinic appt. on Thursday morning.... BUT around 1am he spiked a fever... and Grier and I left for Hotel LCH... a fever and no immune system is nothing to fool around with so they told us to come in... and I know it means for a few days at the least. As soon as we arrived... the process we know all too well started... port access.. blood cultures.. and hooked up to IV antibiotics... He was a very good sport and just rolled with it... finally going back to sleep at 3am!
This morning I left around 7:30-- to go home and shower and go to Grace's school for her wax museum presentation... and I came back to LCH and Jeff went to work... Grier needed platelets so they gave him a premed of benadryl and tylenol and he was napping most of the afternoon... still not eating and I have been trying to get him to drink... he was a little dehydrated. He also has been busy building legos.. and making blood soup...
I am sure he will need a blood transfusion tomorrow... he looks very pale to me and the energy level is just not what I am used to with him. I am not sure we will be discharged for the weekend...
Hopefully he will perk up and start eating...
Just par for the course right now-- sucks... but this is to be expected with this dose of chemo.
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Thursday, April 7, 2011
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
1 comment:
My heart hurts for your precious little boy! I pray his appetite and thirst return very soon. My church and I continue to pray for Grier and your family as we have done since we learned of his illness when he was 2. Our God is a God of miracles and we are praying for one for Grier.
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