Sunday, April 10, 2011

Weekend update.... Still on the 11th floor


Here is a quick weekend update... Grier is still being held captive by LCH because he still has no immune system... He feels pretty good... He started eating a little on Friday afternoon.  He requested a moo moo mr. cow from Moe's-- and actually ate a little bit of it.  We have been playing HORSE in the room... doing lots of LEGOS... and had some visitors to break up the day.  He got a blood transfusion on Friday.  His hemoglobin was a 6... but you would not have known... except that he looked pale.  He was busy and talking to everyone that came into our room.  During the blood transfusion he starting shooting baskets.... so he did perk up a little bit.  He has had quite a few surprises this weekend... Obviously his love of orange and Clemson has inspired people to send him so special gifts.  
Grier's new warm-up from the Clemson Basketball team


The plan is to continue and wait and do the neutraphil dance!!! no, seriously... we just have to wait for the neupogen shots to start to work and his body to recover from the very toxic attack we gave it! His mood is pretty good... Jeff slept at the hospital this weekend to give me time with Hayes and Grace and to be at home a little bit and actually sleep... My mom has been up there some this weekend to to give Grier a new face to play with... There has been a lot of switching places... but that is how it has to be when you are juggling so many schedules.... the best news was that we did not have one game this weekend for anyone so having that off our plate was a huge help! It was not planned we just got lucky!
one of the many LEGOS he has built the last few days!

The collection!

Visitors are OK as long as you are completely HEALTHY and smiling :)

I have a feeling we are close to getting out of there... as long as no more fevers show and there is some movement of his counts!  Cross your fingers... 

I wanted to share this video with everyone... Pete Nickell made it for us -- I am not so good at making short and to the point movies --- he did a great job!! it is from the BIG 2010 Bake Sale from Dec. for Cookies For Kids Bake Sale. 
click on the link to see it.... it is very inspiring to see how many people came    together on a very cold, wet and icy Saturday to show their support and donate to Cookies For Kids Cancer... 

The other link I wanted to share is the new cookbook coming out in September-- 
Gretchen Witt (Liam and Ella's mom) wrote it and from what I know it is going to an awesome addition to your cooking library.... not to mention that the proceeds will go to Cookies For Kids Cancer... I have pre-ordered mine and suggest you do the same.  There are some Charlotte photos in the book from past bake sales-- plus other inspiring stories...
here is that link...cookbook

I know everyone is ready for Spring Break... well, almost everyone!  As much I would like to say we are off on an exciting trip as a family of 5-- it won't be happening yet... I am waiting on word from NYC as to when they want us there for a scan... it has got to be soon after he recovers enough to fly. Then we will see what the next step is. I am waiting for the day all the stars are right and we get to plan something and look forward to it... 

Tomorrow is Jeff's birthday.... we have done cake in the hospital before... actually lit candles and thought we were going to set the alarms off!!! If we are still there.. it might just be a quick cupcake-- no candles..

That is about it.... I need to go get our taxes together--- fun!!! Then I am headed back up to see Grier... I need a rematch of HORSE... he beat me yesterday!




ONE MORE THING... Grier's K class is getting ready to do a map project.... They would love postcards from all 50 states... Since I know this blog is read by so many I thought this would be a good way to get a postcard sent... If you would like to send a postcard to Grier's Kindergarten Class.... They will read them all together and color in the state on the map where it came from.... 


Grier Christenbury's Kindergarten Class
Selwyn Elementary
2840 Colony Road 
Charlotte, NC 28211





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GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's