Friday, September 28, 2007

What a busy day and Hospital! + Update


Ok- The day started with Grier excited about going to the hospital-- weird.. I think! But he did not want breakfast at home because he said he would get something there--
We got to clinic around 9:30 and had blood work done-- Around 10:30 we find out that there are no empty beds on the 7th floor so we would start fluids in the new infusion room at the clinic-- That was the best part of the day-- the room has tons of windows and fun things for the kids to do--- besides TV! Jeff came and stayed with him for an hour and he played with Julia ( another child with Leukemia) and made Grace a birthday card-- I went to ETES to do a birthday class treat for Grace! Around 1:30 a bed opened up and we made the trek over to the 7th floor-- And as of right now, still have not started the chemo yet-- Crazy Day!!

We met a few new kids today-- the clinic was busy-- One 10 year old was diagnosed the same night as Grier with AML-- we have been on the same chemo rotation a few times but never met-- She is doing great and had her last chemo last week!! She also has Dr. L as her doctor! Here is a great article about her-- www.charlotte.com/280/story/280059.html

UPDATE--as of 9:00pm
Grier finally started round 6 around 5:45pm-- I guess that will mean a late discharge on Monday :)
He has been busy playing Hungry, Hungry, Hippos!! I forgot how LOUD that game was!!! He played it for the first time in clinic today. When we were finally called over to the hospital, he did not understand why he could not take it with him!!! Well-- Thanks to Kristen in Child Life another game was found on the hospital floor-- And it is being well loved in room 7927! I think I am going to have to find our old one at our house tomorrow---

I am going to share a new cause with you!!! I know all of us have kids on teams- soccer, swimming, baseball...whatever-- And at the end of every season we get together and buy a gift card for the Coaches that have so graciously volunteered their time. Well, here is a great idea that I recently have been told about a few times this week and I think it is worth sharing--
www.curingkidscancer.org--- Coaches Curing Kids Cancer
I am not sure how many people read this blog-- but I hope that you will pass this idea to League Presidents, team moms, etc-- You basically honor your coach by donating money to this organization--- I really do not know anyone who would not like this-- It is going for a good cause-- And just imagine, instead of the Dick's or Favorite Resturant gift card, if the 200 teams of Charlotte Junior Soccer donated 100 each - $20,000 would be used to work toward a cure for kids! Go to the website -- it is very easy to navigate-- And pass this idea around- please!

8 comments:

Anonymous said...

Amy,

Thanks for the update - I thinking about Grier today going back for #6. Hope things slow down over the weekend - or maybe all the activity and people is a good thing. Hope the treatments go well this round.

Stacy Sparks

Anonymous said...

Whoa, they sure do need a woman running the show there...I vote for you, Amy!

We're surely hoping and praying that Grier was able to start chemo today rather than feeling like the day was a total waste. Sounds like Levine is a pretty neat place...I do need to take a tour. I'm glad Grier is able to benefit from it...TV is the pits...it can be a blessing and a curse (mostly for the adults).

Happy Birthday to Grace:) We'll look forward to another update when you have a moment. Don't hesitate to call with any needs or requests...with 4 to 5 soccer games and a birthday party this weekend, we're here and very much out-and-about!

Lots of Love and Prayers...
Dina

Mary Ellen Paine said...

I pray that he has started. Also we will pray for the 10 year old child diagnosed the same time as Grier. I am sure you were comforting to them,as you always are to everyone.
Hope Grace has a happy day.
As always you are in our thoughts and prayers.
The Paine's

Anonymous said...

Hi Amy,
Hope the chemo has started by now and you can get thru the 72 hours and home to prepare for the next step. We are praying for Grier to stay off the TPN and continue building his strength.
love the Baders

Anonymous said...

Glad you were able to begin chemo last night and didn't spend the entire day waiting for nothing. Hungry, Hungry Hippos is a good one! So glad Grier has found a "new" game to occupy his time for the next few days. I'll have to introduce Mitch to that one.

Thinking of you all this weekend, hoping all goes well to get home Monday, and Happy day to Grace!

Love & Prayers...
Dina

Anonymous said...

Amy - I hope Grier has a good week. Please bring him to Roger Day at ETES Friday at 10:00 if he feels up for it. You are in our families thoughts and prayers.

Ellen Spence

Anonymous said...

Hey You Guys,

Happy Birthday to Gracie!! I hope she is having a great time.

Just read your blog and hope this round of chemo goes even better. I talked with Janet this week and she told me what SUPERMOM had accomplished getting through to the NY doctor. Way to go Amy!!! I'm proud of you. You are amazing.

Give my love to Hayes, Gracie, and Grier. It is a beautiful weekend for a birthday and perhaps it will spill over to the chemo.I hope we see some positive signs coming from it.

I'm thinking of all of you and sending you love.

Love and Grace,

Martha Ellington

Anonymous said...

Hi Grier! Julia had so much fun with you yesterday at the clinic and wanted to make sure you wished Grace a happy birthday from her! :) She spoke about you all afternoon. I hope you are feeling okay with all that nasty chemo. Julia will be in the Big House next weekend of her share! We will be checking in on you and hope you are all doing well. If you guys need anything, let us know. We are all in this together and as another Mom told me, this makes us all family.
Love,
Kathy ~ Julia's Mommy www.caringbridge.org/visit/julianesbitt

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's