Tuesday, March 4, 2008

Change of plans--- not going to NY this weekend-

Well-- As you can probably tell we heard that Grier HAMA'd (the phone rang @6:30pm!)--- We will not be going to NY this weekend and we will continue the Accutane every 14 days--- He will be retested in a month to see if the HAMA goes away-- we are still scheduled for the 3 month scans the first week of April-- Other than that we will enjoy some family time in Charlotte-- He is doing really well-- having a lot of fun and enjoying being at home--!

Please see below for an explanation of HAMA--

What is HAMA?

HAMA stands for "human anti-mouse antibodies." HAMA measures how strongly the body's immune system is reacting to 3F8. 3F8, like most monoclonal antibodies, comes from a mouse white blood cell. This means that 3F8 looks different from a human antibody, and a human will form antibodies (HAMA) against 3F8. If a patient has HAMA, there is no point in doing 3F8 treatments because the HAMA will block the 3F8 from getting to neuroblastoma cells. However, HAMA can disappear, and 3F8 treatments can then resume. Patients are checked for HAMA by means of a blood test. Patients with HAMA do not have pain or other side effects of 3F8 treatment, but patients without side effects sometimes do not have HAMA (and can continue to be treated with 3F8).

6 comments:

Anonymous said...

Amy,

Glad you will be able to remain in Charlotte longer than anticipated. I'm hopeful that Grier will be ready to continue 3F8 after the next HAMA test. I know you will enjoy your time at home with all three children and look forward to welcoming Spring!

Think of you so very often and love that you have nothing to blog on a regular basis. You must be living a fairly routine and scheduled daily life...some of us think this mundane; however, I now appreciate how precious "normal" and "mundane" is.

Loving thoughts and prayers for Grier...

Love to you all!
Dina

Mary Ellen Paine said...

I am happy you will have some more family time. We will pray that HAMA goes away. I think you may be eligable for a medical degree. You have learned so much.
The magnets are a big hit at First Pres. I love when I see one on someone's car. For some reason it makes me feel connected to the driver of the car. We are all on the Go Grier Go Team.
Lots of love to ALL of you,
Mary Ellen

Anonymous said...

Hey Amy!
So are you going to NYC the first week of April? i hope so because i will be there on a School field trip. Maybe I could stop by and say hello! Miss you guys lots!
Jordan Schriefer

Anonymous said...

Anne and I will be out and about tomorrow and will pick up GO GRIER GO magnets!
Mary Ellen Paine is correct, you'll soon be able to put MD after your name!
Blessings to your entire family.
Nora H. Kuester (Cody's granny!)

Mary Ellen Paine said...

Hope you are all well. Think of you everyday.
Hope you are having some nice family time.
Love,
Mary Ellen

Anonymous said...

Amy and Jeff,
Mom and I were so lucky to run into your family at Dairy Queen yesterday. We walked up to get ice cream as a treat for Abby and Makenna and in walked Hayes, Grace and Grier with your Mom. It was so wonderful to see Grier, who looks great and was telling us all about baseball and how tall he was growing. And Grace and Hayes were letting us know about their baseball and soccer teams. What a beautiful, blessed family that you have. We have been praying for all of you daily. When we got home Abby thanked God for making Grier better and for his brother and sister. God is using this to teach us all things!

Love,
Shannon Deitz

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's