It has been awhile since I updated--- We ended up taking a last minute trip to Myrtle Beach with two other families for spring break-- The 3 moms and 8 kids went for a few days!! Since we did not know our plans about NYC until we got home last Friday... this trip was thrown together in days-- And I can say we all had fun--- I am getting used to just dropping everything and leaving-- no more planning!! Who needs a calendar? Ha!Ha!
We did get a call from MSKCC on Friday about Grier's tests--- and there was no NB! We started his shots last Wednesday to increase his white blood count to prepare for 3F8 again--- He will begin that on Monday the 14th-- Monday is always the hardest and longest day-- lots of waiting to see the team to get cleared for 3F8 and then lots of poking with needles!! So say some extra prayers around 9am- It will be a late return to the Ronald... we will most likely let him sleep off the pain killers at the day hospital-- We leave tomorrow morning and will return Saturday- Hopefully HAMA will not come back during treatment this week-- and will stay away so we can get a few more rounds of 3F8 in--
I need to mention the GGG T-shirts-- I have some great friends and they are always thinking about how we can raise awareness for Neuroblastoma and help defray the travel costs to NYC for our family-- I am not going to tell you it is cheap to live two lives-- because it is not-- but we are doing it with a lot of help like the GGG concert and magnets and T-s--!! So... Thanks everyone!!
Grier looks for the magnets on the cars when we are around town--- and he is getting good at spotting them before anyone else in the car--- So many people liked the design and asked for T-s so that was another idea that came about because of all of you-- Order forms are on the www.gogriergo.com homepage--- You might need to hit refresh!! If you have any questions you can email Kerri Norwood-- rnorwood@comporium.net These are pre-order only and there is a deadline--- not sure what it is off the top of my head!
This is one of many things people have thought of from concerts to knitting and a lot in between---
Did anyone see Pat run her half-marathon today??? I missed it-- Grace had a soccer game--- but would love to see pictures !! Way to go Pat!
That is it for now-- I am going to pack the suitcase again-- :) I will update from NYC this week--
4 comments:
Amy,
So happy about the "beach break" this week, that you're heading back to NY for another round of treatment, that there's no NB around(YEA) and that you all are learning to "drop things and go." We continue to think about you all and our prayers continue for things to go well during your week in NY!
Our love to you all,
Martha M.
AS ALWAYS YOU WILL BE VERY CLOSE TO OUR HEARTS AND THOUGHTS THIS WEEK. I AM SO HAPPY TO HEAR YOU GOT AWAY TO THE BEACH. YOU PROBABLY CAN DO WITHOUT A CALENDAR BUT WHEN YOU HIT THE BIG 50 AS I HAVE RECENTLY,YOU CAN BARELY REMEMBER YOUR NAME.
PLEASE KNOW THERE WILL BE LOTS OF EXTRA PRAYERS AT THE PAINE'S AND ALSO IN MY CLASS AT FIRST PRES.
MY LOVE TO ALL OF YOU,
MARY ELLEN
Good Luck tomorrow. I will be thinking about you and sending lots of love and support to the big apple.
Lots of Love,
Mary Ellen
Packing Again! Pack, unpack, pack, unpack! At least you got to include a bathing suit or two in the last suitcase!! Hooray!!
Great news re: test results...answers to our prayers!
So glad to know Grier will have another 3f8 treatment "under his belt" by week's end...this is truly wonderful! I sure hope it continues to do it's job because he sure is holding up his end of the bargain! Hoping all goes well this week and we will most definitely be thinking of Grier tomorrow at 9am on our way to FP-WDS. I am excited at the thought of seeing Grier in carpool line soon!
Many thoughts and prayers with you all this week...love,
Dina
Post a Comment