Today went as well as can be expected--- we did our usual wait at MSKCC-- accessing his port was horrible--- he was screaming the whole time-- and the MIBG injection went off perfectly ( almost on-time)-- Grier actually slept through the injection-
The rest of the day was low- key--- he fell asleep at Lenny's--- he is really tired due to all the tantrums today and the lack of good sleep last night... (our neighbors were up until 1am!!!--- having a great time!---AHHHH!)
Tomorrow we will go at 7am for anesthesia for the MIBG scan--- Then we will come back and be under room arrest while we collect a urine sample for 4 hours---
Hopefully, he will be in a better mood --- it is exhausting negotiating EVERYTHING with him---
We did not get a call tonight about the HAMA test--- so I will ask first thing tomorrow morning--
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
6 comments:
Continuing to pray daily for you and your precious boy. Keep up the fight!!! and keep your eyes up :)
Laura Black
Greenville, SC
So sorry Grier had a bad day and therefore, you and Jeff had a rough day too. At least the tantrums put him to sleep and hopefully you'll all sleep better tonight. Also hope the neighbors will be exhausted after staying up so late last night or, better still, will have gone!!
I'm praying hard for no HAMA so 3F8can come as soon as this week's procedures/tests are done. I too am praying for the very best results on every test!!
Enjoy the 50-degree weather. I won't tell you how warm and wonderful it was this afternoon here!!
Love and prayers to the three of you in NYC tonight --
Betty G
It has to be so tough for Grier (and you, too) going from a more routine Charlotte life back to the hospital and all the tests. You continue in our prayers. Nancy Williams
I can only imagine how difficult today must have been. Negotiating with Mitch is a "bear" and that's only over whether he should be allowed to have fruit snacks or not. I am thinking about you non-stop and hoping tomorrow will be a better day. Nothing like partying until 1am!?!?!? CRAZY. I sure hope they leave VERY SOON!
Hopeful you all get some well-deserved sleep tonight and a fresh start tomorrow!
Love & Prayers...
Dina
Oh My, I hope today has less tears. I am sure it is hard getting back in the routine of all that is done daily for treatment. Just know we continue to think and pray for you all.
Amy, thanks so much for your beautiful blog you wrote at you 1 year mark. You have touched more people with sharing your journey than you could ever imagine. I am so much more educated and aware of this type of cancer and treatment. Not a day goes by that I do not think of you all and your very couragous journey. Grace and Hayes continue to amaze me also.
Continued prayers to all of you, but especially that very sweet boy Grier!!!!
Stephanie G.
I do not blame him for the tantrum. The poor little thing has had his share. Sorry for you. We are praying allot and sending positive thoughts to you. Hope you are feeling all the love.
I hope you get some rest tonight.
As always in our hearts,
The Paine's
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