The MIBG scan went fine -- I guess! We do not know anything yet- Grier woke up well from anesthesia-- so that's what I mean - Childlife came down and tried to talk us into doing it w/o the white medicine-- I asked Grier if he could stay still and watch a movie while they took pictures and he immediately got "anxious"-- I looked at her and said-- no- we will do it with the white medicine- She wanted him to come back this afternoon and "try" the CT machine-- I said maybe next time because we promised him a trip to Toys R US-- he wanted to ride the Ferris Wheel-- and I did not think it was going to be as fun to "try out" the CT machine! Some probably disagree but we have not done anything fun this trip and I was going to get him on the Ferris Wheel if that is what he wanted to do-
Tomorrow we have to get him to drink 8oz of contrast-- we mix it in a clear liquid-- I thought I would be smart this trip --I packed his favorite...wild cherry water (capri sun)-- All but one was taken at the airport-- the TSA lady said he could have 1--- well, I needed 2 to get 8 oz.-- So, we will have to venture out later to find a clear liquid for the morning- We have to be there at 10:30 for his scan and then they will do bone marrows after that-
His ears are still very red-- he is on an antibiotic 3x a day-- believe it or not this is his first ear infection- We have a make shift fridge in the tub.... a basin filled with ice!!!!! Nice huh? I did not feel like going to the over stuffed community fridge for medicine-- (3x a day)
We walked to 42nd street and 7th Ave. today--- stopping at Toys R Us for a ride on the Ferris Wheel and a new SpongeBob leapster game-- we had a nice late lunch at Lindy's-- it was good but it definitely had NY prices-- a $16 grilled cheese!!
We found out there is not a corporate angel flight for us to return to Charlotte--so I booked a USAir flight for Friday--not much choice since most were sold out and some were $600 a person-- luckily I found something that was less! It makes me a little anxious to think that with the economy like it is-- our travels to NY may be like this for awhile- I may have to stop gambling with a corporate angel flight and just book a round trip as soon as we know when we have to return. I am sure it will work itself out-- and by the looks of 5th avenue today... you would never know about the economies troubles! Shoppers everywhere--with bags!