Tuesday, October 7, 2008

MRI done!

We are almost done with day 1 of scans-- I am really glad considering last night was one of the roughest we have had in a while-- Grier had a really hard time settling down - which was very surprising since he should have crashed from getting up early and having a really busy day-- Around midnight, he told me his ear hurt. I kept asking him about his ears because he would cover them up and talk loudly-- and this started as soon as we got off the plane -- I thought the air pressure was bothering him-- But he said he was fine-- and told me he was louder when he covered his ears-- Around 2, 3, 4, 5, 6 he was sleeping but not peacefully-- and I started thinking about the Urgent care-- not really where I wanted to go-- we ended up waking up around 7:30 and he said he was fine-- I knew that was going to be my first question at the check-up-
We got to the PDH around 8:30-- and he made his rounds to see some nurses-- he was very shy until they asked what he has been doing at home.... He would say.. I go to school (by myself!)-- and then he would tell them that Mrs. Johnson, Mrs.Thompson, and Mrs. Winn are my teachers-- One of our favorites said-- Grier are you in High School now??-- You have so many teachers! And Grier laughed and he said, No, PRESCHOOL!-- Then he shared with everyone that he does not wear diapers anymore-- just boxers!
After all the catching up, he had his check up and guess what??? Grier has ear infections in both ears! I was shocked-- one looks really bad and must hurt-- they were shocked too because he did not have any symptoms-- He was going to start getting immunizations again but because of the ear infections we are going to wait-- A fever is the last thing we want right now--since he has a mediport. He will still get his flu shot on Thursday while he is under anesthesia for his bone marrow tests-
Anyway-- He did great with his MRI-- there was a little confusion about having him try to do it w/o anesthesia-- I told them I did not want to try on this test because it is so loud and long (an hour)-- maybe a CT-- so they called the Dr. in to give him the white medicine-
He woke up and told Emily ( nurse) that he wanted a bagel and OJ-- well-- it was 12:30 and we ended up at Lenny's for a turkey sandwich-- He can not have OJ because of the urine test that he has to do tonight!! He insisted on getting out of the stroller at Lenny's and he was very wobbly -- I caught him a few times-- and finally convinced him to sit until he was not quite so dizzy!
We are back at the RMDH house now and Grier is playing an arcade game-- we have to go back at 2:30 for the nuclear injection-
Tomorrow we have the MIBG scan-- He will not be able to eat or drink anything after midnight again-- I will break that to him later-- He told me last night that he was starving!! Can't wait to hear what he says about that again--

5 comments:

Mary Ellen Paine said...

Happy to hear you are almost done for today. Sorry about the ear infections. Poor Mrs Sitton's son has ear infections too. It must be that time of year.
Hopefully tonight you can get some rest.
Thinking of you always,
Love,Mary Ellen

Anonymous said...

Hi Amy Jeff and Grier,
Glad to hear you got a room at the "Inn". Hope that Grier will sleep better for you tonight and that you get control of the remote for a bit!! :+}
We pray for clear scans and pain free testing for Grier!
love the Baders

em and her boys said...

Nothing like a plane ride to mess with ears! HOpe you can get some sleep tonight. Thinking of you!

Anonymous said...

Grier,
This is Mrs. Beth writing to you. I just wanted you to know how much we missed you today in Music Class. It wasn't the same without you there. We talked a little about Beethoven again and learned about another composer, Hector Berlioz, too. I can't wait to share his music with you! Get your ears all fixed up so you can hear! Good luck with your scans and your ear infections. I will be praying for you and your family.
Peace, Mrs. Beth

Mary Ellen Paine said...

Hope you had a quick and easy day today. Thought about you all day. Hope you are all doing well. Just know lots of love and prayers are coming your way.
Lots of love to all of you,
Mary Ellen

GO STEEL FAB!

GO STEEL FAB!

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Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

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Before 3F8

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Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

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Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
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Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

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Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's