Saturday, October 4, 2008

Candy or Shoes Off?

http://wcbstv.com/video/?id=118285@wcbs.dayport.com--
Bake sale video -- very good!!

On Friday morning, Grier asked me what airport we going to when we go to NY? He said, Is it "the one with candy" or "the one where you take your shoes off"?-- I had no answer for him at the time because it typical fashion I was waiting to hear back from Corporate Angels. After I dropped him off at preschool, the phone started ringing-- And I was feeling a little better because we were getting some sort of a plan-- We were told of a flight on Sunday night- ( we have flown on this flight a lot--) Not my first choice since our scans do not start until Tuesday but I am trying to be more flexible-- so I said I would take it--- after multiple phone calls between us- working out the same details as every other trip we have flown with CA-- I was told OK-- you are on that flight! I had to start calling our NY social worker to change our reservation at the Ronald-- we were suppose to arrive Monday-- all of those details were taken care of and I was getting in my NY groove-- I started preparing my house.. bills paid, list made, checking my calendar so I could pass off my life to my mom -- I was getting tons of things done and the phone rang-- The woman said "BAD News"-- And I knew the flight had been cancelled! Yes- I should be used to this by now-- but I was assured this one was going- I immediately got on the phone to the social worker and told her we would not be coming in Sunday Night-- I am little worried about housing at the Ronald again-- She said it is tight once again and they are working on putting people at hotels but we SHOULD be OK-- will not know until we get there- I booked a flight (one-way) on US Airways-- and we will fly into NY on Monday- I wanted a late afternoon flight so Grier could at least go to school one day but with the room situation at the Ronald we need to get there so we have some daylight to find a place to go if there is no room!
I hate this part of going to NY-- I know it would be easier not to have to worry about the logistics of getting there- I can see why some choose to stay at the Ronald long-term-
We are shifting gears a little to get ready-- You have to do things differently when you go to the airport "where you take your shoes off"! Grier is looking forward to the trip-- not sure why but he is ready to go. He did ask if he has to get a finger prick? I said I did not think so and he wanted to know if that was forever? Certainly, can not promise forever but I will try to get them to take blood from his port! He hates the finger prick more than anything in the world! So-- for him this will be a good trip without that!

3 comments:

Anonymous said...

So shoes off it is! Good luck on Tuesday. You are one amazing family.

Nora H. Kuester (Cody's, well, you know!)

Anonymous said...

Will be thinking about and praying for you as you go to NYC this week. I'm glad Grier is looking forward to the trip -- maybe life in the slow lane for the past few months isn't exciting enough for him! So glad that you have had the long time (relatively speaking) at home for him to go to school and get back in the swing of school and firends there.

Keep us posted as to what you're doing this week. You know I'll be checking your blog every day!

Love and Godspeed!

Betty G

Mary Ellen Paine said...

Thinking of you all day. Praying you are in N.Y. and safely at the Ronald. I am curious if you had to take your shoes off or not. I will have to talk to him about that when he gets back to school.
Know you are in our hearts and our prayers.
Let me know if you need ANYTHING.
The Paine's

GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's