• MONDAY, JULY 19, 2010 12:40 PM, CDT
  We went to clinic this morning and had his port accessed...and had his weight, height and temp taken... and then had a check up by Dr. M-
  The good news is that he did not have a fever when we were there... He was in his stroller so that is always a clue to everyone that he was not feeling great.  
  
  His check up went fine...... his counts are LOW -- no immune system and his platelets were a surprising 13-- They usually transfuse at 20.... but they are finding that is not necessary all the time so he did not get a transfusion.  His Hemoglobin is 10-- which is good ... Dr. M liked the plan that Dr. K came up with--- I asked if he thought he was just buying time to come up with the larger plan and he seemed to agree... but this low dose should not affect counts and basically his quality of life while on it should be fine.... I worry about the diarrhea but we will be more pro-active and give him something before we start the " I run to the can"-
  
  Well-- the bad news... The temp is most likely coming from a mosquito bite that Grier has on his face that is infected.. (staph)-- Most people with immune systems would fight this easily but without one he needs some help..... I had been putting neosporin on it but now we have switched to Bactroban....and he is taking an antibiotic ( Clindamycin) 3x a day.... we are still on fever watch and he said we had a 50/50 chance of being admitted in patient - ugh.. a simple bug bite--
  
  That's it.... he is napping right now.... When we were driving home I explained to him that there is no wrestling with Hayes today.. no jumping, and diving on the furniture... I think he understands that low platelets are not fun... We go back on Wednesday to check counts again...
    
  
  
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• MONDAY, JULY 19, 2010 6:38 AM, CDT
  Well-- we woke up in our house....... actually Grier is still sleeping.  And I never really slept... lots of temps were taken last night and the highest was 99---- Around 4:30 he woke me up to tell me his leg was sore..... this happens sometimes when the neupogen ( G-shot) starts to work.... meaning his marrow is doing its job!  It can gives you bone pain... so I rubbed his leg and he fell back to sleep--- 
  
  I took his temp around 7a and he is back to 100.1--- ugh We are going to clinic at 8:30 so hopefully we will have a better idea if this is a nutrepenic fever -- I have a bag packed just in case we get admitted to the 11th floor--