Tuesday, July 6, 2010

NEWS from ROOM 1---again :)

Our weekend had some up  and down moments but it turned out to be a nice July 4th --- The MRI was the highlight... of course :) We had a great time on Saturday and Sunday with friends and fireworks.... and Grier lost his "first tooth" on July 4th....

Sadly, Jeff's mom, Mary Christenbury died on Monday the 5th... surrounded by her family at home after a long fight with cancer. She will be missed but we are happy to know she does not have to be in anymore pain or discomfort.  http://www.hankinswhittington.com/sitemaker/sites/Hankin1/obit.cgi?user=226614Christenbury

Yesterday was tough as I had to break the news to Grier that we were having a sleepover at the hospital.... I expected the worst reaction but Grier said OK...  & can we pack right now.....? Never asked why...  or how long????  He just wanted to pick his baseball shirts to wear ( and he picked enough to stay here for a few weeks)--- Not the best week to live separate lives again... but after that reaction I was not dreading it as much.

Today we went to the clinic to check in and then we walked over to LCH to be admitted.... sounds funny, right???? YES.... it is crazy!  Chemo started around 2-- I think that was the goal time.... yes .. we got here at 9 something but I was told a realistic time to start would be 2--- HA! Grace & Hayes joined us during the check in process.... and hung out for the day... we watched movies, had a visit from Homer... and just hung out.  Not a bad day... just not the ideal place.... no one wants to spend time in the hospital...
I can say that Grier has finished his first day of his 11th week of chemo...... really... I am not kidding he has almost had 3 months of daily chemo....   hate that stuff.... but it is the only choice..... He is still in a very good mood.... actually just sent the Nurses Aide down for "soft" bacon at 10pm----  and wanted to drink the YoBaby I brought him for tomorrow morning...... I just hope we make it through the night without vomiting ..... not much to ask right?  I also hope that after midnight he sleeps and does not wake up to pee... but after all the post hydration fluid he has had I am doubtful that will happen......  :)

I am hoping he gets discharged by Thursday sometime... that is the plan right now..... We will still have to go to clinic Friday morning for an hour of chemo.... and that will be it for week 11----

I will update as we know more details of the week---- goodnight from room 1--- I am not sure if it is luck that we have almost spent over  a month in this room since May.... or what???? It is beginning to feel like home :)---- I love the neon blue light and the neon lights out my window...... !!!!  Grier is very comfortable here in his very own man-cave~

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GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's