Another L O N G day.... lots of waiting for 2 procedures that took all of 20 minutes!!! Our day started later... we did not have to be at the hospital until 11:30-- Grier woke up at 7 and started asking when he could eat something!  I knew these four hours were going to be FUN.  We slowly got ready... did some scratch off lottery cards... and got all our items ready for the day.  As soon as we got to clinic he was allowed to start drinking his CT contrast... not a problem.. before I knew it he had finished the entire cup! He did an amazing job getting accessed -- he has a difficult port... it is tilted a little and they had to adjust it after the needle was in... he stayed still and handle that like a champ.... We waited in the playroom for them to call us back... it was a long time... but it passed quickly because I was chatting with other moms I had not seen for a few months... and playing "horse" with Grier.  They finally called us around 1 to get his check up by the team... "he looks great" is the first thing I was told by one of our docs... :) I told him I wanted him to say that to me tomorrow when I see him in the procedure room to do Grier's bone marrow test!  During his exam they told me that he has an ear infection in both ears... Grier says his ears don't hurt... but he is on antibiotics because he has a port and fever and rick of infection!  He has had several ear infections.... always after we fly and MSKCC always finds it! We finished the exam... Grier co-signed the consent for his bone marrows and we left for CT -- there we waited and waited... we both were starving at the point... and by 2 they called him back.. He did great... I was suited up in my lead vest... They called from the office to ask my first name after the first 2 pictures.... and I must have looked stunned!  I told them and then asked WHY they needed to know-- He said.. Don't worry just need it for this book about the exposure levels???? Then the nurse came in and needed to put the contrast in his line... I tell her the wrong side of where his port is... and Grier says... Wow, MOM you forgot where my port was! The nurse starts to laugh because that was in his 20 year old voice... and she said oh Grier, you mom has a lot on her mind right now-- and he smiled his halfway smile.. 
2:20-- we were out of there headed to lunch and then had to go back again for his MIBG injection- Waited forever in the HOT waiting room and finally got the quick injection and went back to the RMDH--- played in the room a little... a few quick games of ping-pong and then we had to go get his antibiotic for his ear.
He talked me into a quick trip to Lester's ... looked at every pair of shoes they had and didn't like anything!  We ended up at Southern Hospitality for dinner... then a brisk walk back to the RMDH!  He fell asleep around 8:30-- tomorrow we have the MIBG scan at 9:30 and bone marrows after-- around 11:30?? nothing to eat or drink until after he wakes up from bone marrows... 
we have not heard anything yet.... not sure if we will by the time we leave... 
can't wait to wake up and see what the weather will be like.. Grier is packed and ready to go.... not quite sure where those dog are going to fit!! I might have to put them in the pink bucket.... but you know USAirways will count that as a carry-on!!!!

more tomorrow- and we did not win the lottery this morning :(