Monday, January 31, 2011

Hurry up and wait....

All tests are back and no signs of the nasty NB beast was found... I wish I could say I took I deep breath and exhaled but this time has been very different. Last week when I found out he might have to do high dose chemotherapy again really threw me... It was as bad as the day I heard he had to do ICE last May. Now, we are once again waiting for them to decide what to do... Heard that before... Crap, I think I have heard that for the last 6 months--while we have been chasing out own tail stalling with lose dose chemotherapy! So.. We wait.. I should be good at it but I am not...

Grier finally seems to be feeling better... He missed school last Friday because he woke up with one of his headaches... He had not had much to drink or eat the day before and the coughing was non-stop at times. He took a cough medicine with codeine and I thought the good nights sleep he had on Thursday would have been the best medicine. The Friday morning headache was bad.. The worst part was he knew his class was going to the circus and you could see him tying to get ready and go to school...about the time it was time to head out of the door he got sick... His head was really hurting so no school... He fell asleep after he got sick and about an hour later he woke up and said.. Are all my field trips to the circus? I had to break it to him and say no... And he said I always miss the fun things. About 10 minutes later he asked to eat.. Looked 100% better and said do you think I can go to school now? I told him the kids were already on the bus. He said, can you take me and we can find my friends? So.. The crazy mom that am said sure.. And we headed to the circus... I was actually suppose to chaperone and I had to find someone to do it for me... Thanks susan! Grier and I got into the circus with no ticket and found their class :) He enjoyed it... Took a nap after we got home and I am glad he did not miss it-

So the waiting continues... This week has no clinic appointments that I know of.. But we are finally going to see the eye doctor..the message from the office said to be prepared for a 2 hour appt.-- hmmm.. I hope NOT..! Wish us luck and hope that the school eye test he failed was a fluke :) I have got to get to DMV sometime soon... And get the maintenance required light taken care of in my car....I was wishing for normal and you can't get anymore normal than that!

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GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's