Our day started at 5:30 this morning..... Grier hops right up.... I was trying to decide if I should hit snooze and then telling myself I should have gone to bed a lot earlier than I did~ We got to the hanger around 6ish... and flew out on our flight around 7... landed in Teterboro and the car took us to the Ronald.  Our flight was awesome, easy, and relaxing. Grier played on his ipad and chatted... We have flown with BofA enough to know the pilot and some flight attendants... They are always going out of their way to make this easy.  Grier wanted to wait to eat... he said it was a little too early.. The driver of the car was extremely nice... I think Grier entertained him a bit because there is nothing like riding in a car with a NEW reader... he spelled everything and sounded things out for the entire ride... the driver started answering him by the time we made it to the Ronald!  He also told us he knew we were from NC so he turned the heat up in the car.... sounds like a perfect trip... but reality is we aren't on vacation!


We got to the RMDH around 10:40--- it took along time in NYC traffic... Our room was not ready so Grier wanted a HOT Chocolate... he thinks the dunkin doughnuts in NYC makes the best---- I totally forgot the no chocolate rule... but he ended up taking a sip and not liking it... whew..I don't think a sip will mess up the urine test! Can't wait to get that urine test out of the way so he can eat without me worrying about the "list"-
We walked backed to see if our room was ready and it was.... made beds... unpacked our "BOX" from storage... and met up with Julie and Adam.  We got some lunch and met up with Julie and Adam again after their last appointment.  The boys were being treated to a VIP tour of FAO schwarz so we walked to FAO and met our toy soldier, Rich.  Barbara from Candlelighters of NYC planned this amazing tour --- Adam said it was his best day ever in NYC... :) Grier was a little shy but has talked about it non-stop tonight! It was alot of fun... they toured the whole store and danced on the piano and ended with a shopping trip using their gift card that candlelighters gave them.  Grier SHOPPED  and looked at everything... changed his mind 4 times... but is the proud owner of 2 new stuffed dogs... yes, bigger than a matchbox car for those that are wondering! The 4 of us took a cab home... and went to dinner at the RMDH.... it ended up getting delayed so we played BINGO for an hour first and then ate dinner... I think I said to Julie... I feel like I have been here for 3 days already!!! 
It was a good day in NYC for us... I wish I could say that was the case for everyone here.  The reality is we wouldn't be here at the RMDH if it weren't for pediatric cancer... and that is the case for the rest of the people here... we would be at home with our families in all parts of the world.  


Tomorrow our scans start... we don't have to be anywhere early.... whew... it will be a different kind of day... reality will hit hard as they access Grier's port and I make a game out of sucking down contrast for his CT.  He informed me tonight he liked the CT because it makes him "warm"--- that is a new one... He is describing when they inject the contrast!  He also is looking forward to the white medicine.. aka anesthesia... all things that are our reality right now... 


pray if you pray or do whatever you do for clean scans for us and all our friends here scanning this week... also for options for those that did not get good news...