12 +

We leave today around 5pm..... which is a good thing.. Grier gets to go to school do his routine and then we will jet off to our other life.  We are very close to our 4 year anniversary date of when all this started.... so that means we have done this routine CT, MIBG, MRI, Bone Marrows = FULL WORK UP at least 12 times.... in the last 4 years- we have had a few extra here and there when there was a problem... BUT by the 12th time I should be a pro.. I know the feeling of stress and how to cope with the day to day while we wait and do each scan...RIGHT!!! The truth is it is rarely the same... except I have noticed I am in a fog... don't really want to talk and very focused ... Grier is getting ready too-- he is asking his schedule and wants to know what pictures are when and how long he needs to stay still for each one... He is even trying to sneak a trip to the "shoe" store in... He is not dumb!! This time it will be hard... Our Thursday is packed with the most we have ever done in one day... 5 appointments... And on Friday we will have the MIBG and Bone Marrows in the morning... don't know an exact time yet... we won't know that until Thursday afternoon  when we get the call from anesthesia.  We are planning on coming home Friday night...

We are flying to Teterboro, NJ with corp. angels.... which helps so much... no security, no lugging bags, stroller etc. to the farthest gate.. We will arrive around 8:30p-- unpack our "box" and move in to our room... We know some people there this week getting scans and doing 3F8 so we will get to see them.
Home will run like clockwork... everyone is set here with their routine and I bet they won't even have missed us by the time we sneak into our beds late Friday night...

I will update from the Ronald... it will probably be very short because I am not bringing my laptop... I am going to travel light this time :) Hoping the luck of St. Patrick's Day is with us during these two days...