Hello MARCH!

Just an update... Grier is doing well... He has finished his first 14 days on & off of accutane... He actually started the 2nd cycle this week.  He had his follow-up appointment at the eye doctor and his prescription in his glasses need to be changed... I hope this helps him wear them more.  Our days have been very "normal" lately... appointments seem to be less and less and he has been to school for two weeks straight! We leave for NYC next Wednesday to start the scan process again... 2 days of HELL from anxiety while I try to make NYC fun in between MRI's CT's & MIBG's!! Grier is OK with this idea... not thrilled that he is missing school and especially not thrilled that we will be gone during St. Patrick's Day-- we might have to catch a leprachan at the RONALD :)- He loves school and the best news is that he is reading on his own!  He went on a field trip to the HOSPITAL( yes, you read that right!) this week and told me some funny stories when he came home.  He said he "knew" all the answers to their questions.  I can only guess what he said... The hardest part of having "normal" weeks is getting back into the hospital routine... I can not believe we are already having scans again.... these 8 weeks have flown by... I am trying not to think about the "what if's" and "what is next after next week"... but after reading about the possible treatment it scares me quite a bit.... I am not sure I am ready to get back into 3F8 at an escalated dose he has not had before... the dose that he had was HARD enough to watch him go through. I know-- one day at a time... and I know plans can change so I will just focus on next week~ so much easier said than done!

That is it for now.. hoping to enjoy a few more normal days before we leave on Wednesday...