Tuesday, March 29, 2011

This picture was sent to his class.... They sent him a group photo today with all their thumbs up.... so Grier sent this back to them!
Day 2 of chemo went pretty well.... we started off on time and Grier felt pretty good. He ate his breakfast... we went on some field trips to the 12th floor Garden?? ( that is a ? because not sure I would call it a garden), the gift shop, outside for some fresh air, and finally to the cafeteria in the main hospital--- he rode the IV pole the entire time and trust me when I say we were getting some looks as we went from place to place! He was really excited because we had some visitors coming after​-​school. After a quick visit to the play room he wanted to come back... he complained of a headache. He decided to wait in bed for his friend. He was getting quieter and quieter and you could see him trying to fight through it because he had plans.... Leila got here and he was quiet... and all of a sudden he was nauseous.. chemo had just ended for the day and I was hopeful this was a wave that he was feeling. Not so much.... the headache continued to get worse and then came the need for the PINK bucket.... I thought he would bounce back after that like he usually does until he curled up in a ball and the BIG tears started.... his head was really hurting... we regrouped a little and added some medicine to his IV... and it knocked him out. I guess a good thing... but he missed his visitors that he was so excited to see. I did find out later that his zofran had not been given around the clock... and we had missed some doses today.. that has all been fixed and we are playing a little catch up on the nausea...
Tonight he is feeling a little better... his face is puffy from all the fluid they are giving him... and he is peeing every 30mins- 1 hour-- all night long. jeff and my mom were here when I ran home to see Grace and Hayes... and to take a shower. That is the hardest part of being in Charlotte... trying to balance home and hospital without the guilt... When I am in NYC it is easier because I just take care of Grier... here I am trying to juggle home and hospital.. I had this grand idea this time to pretend I was out of town.... and not try to do the "home" part.. but it did not happen... oh well, one day I will figure out how to make this work for all of us.

We hope to be home sometime in the morning... he gets a 30 min infusion of chemo and then we are out of here.... IF not unexpected happens... PLEASE... We both need a good night's sleep.

That is about it... Grier and I are getting ready to read the cards that his class made for him today... and his reading buddies class.. Mrs. C & Mrs. S brought those today... he is very excited and hunting for a few from his good friends!!

I will leave you with a funny story about this place.. Food Service is lacking here... and seems to have gotten worse since the last time we stayed overnight. Grier had ordered a banana for breakfast... along with some other things and they brought a GREEN banana... She says as she brings it over... This is GREEN but put it in the sun to ripen.... I laughed ... and said OK.. and later looked at the GREEN banana .. How long was it going to take to ripen.... we are planning to leave tomorrow? Then she came for a lunch order.. and we ordered grapes and other things... she delivers and says they are out of grapes... This cracks me up... I think LCH needs to go grocery shopping... first they are out of Kleenex... and now grapes! If only the customer service was like the Ritz... not just the bill!

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GO STEEL FAB!

GO STEEL FAB!

Go Grier Go Magnets are Here!

Go Grier Go Magnets are Here!

Grier's address in NYC

Grier Christenbury
Ronald McDonald House of New York

405 East 73rd Street

New York, NY 10021

Before 3F8

Before 3F8

After 3F8

After 3F8
30 minutes later

Free Money for Go Grier Go!.. just by shopping online!!

iGive.com

Grier leaving NY-pres and going back to MSKCC

Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!

Grier going for a ride in the ambulance across the street

Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!

Grier patiently waiting surgery to remove tumor

Grier patiently waiting surgery to remove tumor
Monday 10/29/07

Go Grier Go Picnic in the Park

Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!

On the way to NYC!

On the way to NYC!

Grier at the "new" clinic at CMC

Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07

Some of our team at the Hopebuilders 5k

Some of our team at the Hopebuilders 5k

HOPE IS GOOD!!

HOPE IS GOOD!!

Supersib- GRACE

Supersib- GRACE

SuperSib-- HAYES

Grier and his Wonder Pets fly boat cake!

Grier and his Wonder Pets fly boat cake!
I am 3!

Grier & Grace at Covenant

Grier & Grace at Covenant

Grier & Pat

Grier & Pat

Go Grier Go!

Go Grier Go!




Jack and Charlie wearing Go Grier Go T's

Jack and Charlie wearing Go Grier Go T's