I can not believe it has been almost a week since I updated this blog!!!
This week was very busy-- Sunday I gave blood for the first time ( AND without fainting!!!) Thanks to Derann I did not chicken out!! Monday Kidspath ( home nurse) came and did a CBC-- his counts were really good so they cancelled the appointment for Wednesday and told us to come in Thursday instead! Wednesday we went out of the house for awhile --- :) Thursday we went to clinic and found out his counts were at zero!! That was a shock since they were so high earlier in the week---- They wanted us to come back on Friday am to check platelets because he thought he would need some--
Well-- Today we went to clinic at 7:45AM!!! They drew blood and then we raced downstairs for the 8:00am CT scan appointment!! He had the scan and was in recovery by 11:30 and our favorite recovery room nurse was waiting for Grier!! After recovery we had to go back to clinic for a platelet transfusion-- They were right! So, Susan walked us to the clinic ( which is in the opposite end of the hospital!) We got home today around 2:45 -- Needless to say it was a LONG day for all!! He was back in the front yard tonight hitting baseballs-- or "homeruns" as he says~
Hopefully we will make it through this weekend fever free - Next week is another crazy week full of appointments-- clinic ( probably for a blood transfusion) and then Tuesday, Wednesday, and Thursday he will have a nuclear scan called MIBG- This scan will light up active neuroblastoma cells-- We are told that sometimes on CT scans you can not tell the difference between scar tissue and tumor-- so this will give us more answers-
Thanks to EVERYONE who has sponsored me and my team for the Hopebuilders 5K walk that benefits Levine Children's Hospital!! If you would like to do this here is a link -- www.register.hopebuilders5k.org/goto/Amy.Christenbury
GO STEEL FAB!
Go Grier Go Magnets are Here!
Before 3F8
After 3F8
30 minutes later
Free Money for Go Grier Go!.. just by shopping online!!
Grier leaving NY-pres and going back to MSKCC
www.cornellpediatrics.org-- Great hospital!
Grier going for a ride in the ambulance across the street
just transporting-- not an emergency!
Grier patiently waiting surgery to remove tumor
Monday 10/29/07
Go Grier Go Picnic in the Park
Thanks to everyone that helped!!!
On the way to NYC!
Grier at the "new" clinic at CMC
Playing with the doctors and nurses 10/19/07
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
SuperSib-- HAYES
Grier and his Wonder Pets fly boat cake!
I am 3!
Grier & Grace at Covenant
Grier & Pat
Go Grier Go!
Jack and Charlie wearing Go Grier Go T's
4 comments:
Amy,
Again, it's so good to hear from you and get an update on sweet Grier, the king of baseball!
Sounds like today went as best as could be expected, maybe better! Praying that you make it through the night and tomorrow and then the weekend "FEVER FREE!!"
Looking forward to hearing more about the results of T/W/Th fluorescent scans...praying for Grier every step of the way!
Here's to a quiet weekend before a very busy next week...
Love & Prayers,
Dina
Hi Jeff, Amy, Grier, Hayes, and Grace:
Our household continues to pray for each of you and hope that your medical updates will be positive. I am looking forward to seeing Hayes and Grace at the opening of school. If you can grab a second during open house come by the science lab. I am thankful that Hayes and Grace have had a busy summer with lots of sun and fun. The pics of Grier are great. It is good to see his smile. Keep hitting those home runs, Grier. Go, Grier, go!!
With love,
Mrs. Daughtry
Hey Friends!!
We just went out to dinner for my big 28th!:)....and had a Grier bracelet spotting...so of course I go and introduce myself and ask about them praying for Greir, etc.. I know they thought who is this nut approaching us.? Anyway, it was a sweet teacher (3's) who teaches at First Pres and doesn't even know sweet Grier, but is sporting her bracelet with pride!!
We still think of him constantly, and are saying great big prayers and extra good thoughts for the scans this week.
I am looking forward to walking with you/running in October to support Levine's. What a blessing that this facility is so close to you and your family.
"WE'RE ALL IN THIS TOGETHER"...la la la la....can you tell what we watched Friday night?....I cannot get the songs out of my head. I am sure Grace had a splendid time watching it!
Love and love and prayers!
Hannah and family
Amy,Sorry I have not written but I was away. Believe me I prayed everyday and kept you all in my thoughts and prayers.
Tonight I went to my first get together for The Weekday School. Everyone was talking about how you are all such an inspiration and how we all pray and think of you daily.
Please know we keep you all close to our hearts.
Love,Mary Ellen Paine
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