We woke up very early this morning (5am)-- and got ready to leave-- we had to clean our room quickly and pack up the sheets and we were done-- we had not even been in the room 24 hours!! I hate that we got a taste of what it was like to stay at the Affinia--- that was nice and we had some room to spread out-- and we did not have to clean to leave!! Ahhh-- but the RMDH is home to us and to so many we have met --so that is our first choice--- and it is $35/night!!
Our ride picked us up at 6am-- we rode with another family from Ft. Mill-- They had just recently moved from FL and were here for scans as well-- They have been fighting this fight along time-- 4 1/2 years-- wow! She has done so many protocols developed by Sloan and on some she was the first to participate-- it was very interesting to talk to her and learn some things--
We made it to our house by 11-- and had a low key day-- Around 4 we headed out to Grace's swim meet--- So-- we are back in the full swing of things already-- H, G, & G-- have enjoyed the afternoon wrestling and playing-- and in between screaming at each other-- Grier would occasionally remind them that he is SO glad to be home!!
Grier is going to attempt to go to Veggie Town this week -- ( Vacation Bible School!!)--- He has talked Grace into helping in his room so I can not wait to see how that goes--- I think it will be fine-- especially with Grace --but we are starting cycle #6 of Accutane on Monday and you never know how that will change his mood!
I will update as soon as I hear results-- I believe they have to be good-- he looks and acts so well-- but I know that things could be going on inside his little body-- so we can not just rely on outward appearances!!
Grier Martin Christenbury(age 2 1/2) was diagnosed with stage IV neuroblastoma on Tuesday, March 27, 2007- This blog is to help family and friends know how he is doing with treatments. Go Grier Go! www.caringbridge.org/visit/grierchristenbury
Saturday, July 12, 2008
GO STEEL FAB!
Go Grier Go Magnets are Here!
Grier's address in NYC
Grier Christenbury
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Ronald McDonald House of New York
405 East 73rd Street
New York, NY 10021
Before 3F8
After 3F8
Grier leaving NY-pres and going back to MSKCC
Grier going for a ride in the ambulance across the street
Grier patiently waiting surgery to remove tumor
Go Grier Go Picnic in the Park
On the way to NYC!
Grier at the "new" clinic at CMC
Some of our team at the Hopebuilders 5k
HOPE IS GOOD!!
Supersib- GRACE
If you have time-- these are great WEBSITES to look at!
- Grier's CaringBridge Site
- GO Grier Go! -- website
- Dilworth Little League--Steel Fab (Majors)
- Childhood Cancer Awareness Video
- The Loneliest Road Campaign
- Children's Neuroblastoma Cancer Foundation
- Community Blood Center of the Carolinas
- Coaches Curing Kids Cancer
- SuperSibs
- Levine Children's Hospital
- curesearch
6 comments:
Always glad to hear from you! Happy to know you all had a good day and that you're safely back in Chlt! I'm sure Grier and Grace will have fun this coming week at VBS. Nothing like having a sibling to smooth the rough patches...we do that a lot!
Glad you met the Fort Mill family...always so good to know you're not alone and to gain a better understanding/knowledge. Knowledge is power!
Hope you all enjoy a wonderful Sunday! Hope Grier does well with the Accutane...sweet thing!
Let us know when you're ready to go to the pool or meet for lunch/play date at the park.
Love & Prayers...
Dina
Glad you are home and all back together. I am glad the kids had a normal day. How fun.
I will add the people from Fort Mill to my prayer list.
I am praying for good test results. Hope you hear soon so just maybe you can relax a little.
Enjoy your family and the rest of the weekend.
Hollar if you need anything .
Lots of love and prayers,
Mary Ellen
Oh Amy!
I'm so glad yall are home and safe! Veggie Tales VBS is going to be such a blast for Grier! And you know Grace is going to love helping! I'm so thankful that he is doing so much better and things are back to normal. The hassle of the sleeping situation in New York sounded horrible, but yall seemed to manage it with poise!
Love and Miss you! God Bless!
Julie :)
Glad you are home safely! Looking forward to seeing Grier in Veggie Town!
Alice Arwood
Glad you made it home from New York and I am praying for great test results. I am sure you were happy to go to the swim meet - you're lucky to have Saturday afternoon meets, ours are at 8:00 on Saturday mornings!! I am sure VBS will be tons of fun, my kids always loved it when they were young. I will be checking the website every day and hoping to see good news very soon.
Patti
How awesome was that this morning to look up from my computer in my office to see you and your three children walking into the Rec. Wing. I am so thrilled Grier made it to his first day of VBS! Cody will be SO EXCITED to have his buddy in the "Eggplant" class this week!
What an answer to prayer! Yesterday at Covenant's new Family Style Worship at 9:45 tons of prayer requests went out that Grier would make it to VBS! There is nothing more precious than to hear children praying out loud for other children.
From the mouths of babes...
Hugs,
Anne
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